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Hello everyone, When I first joined this amazing group of people there was so much that I just read. I grabbed on to each and every thread like it was the oxygen that I needed as a caregiver to breathe. One piece of advice was to "bank my PALS voice" I heard it and I tried (though not too...

Hi all - I am new to this forum and new to this role as a care giver to a patient with motor neuron disease. I have been looking for a place to be able to share what I am going through with people who can understand. My husband and I met in 2009 and married in June 2014. In May 2016, we saw his...

Thank you for taking the time to read my thread. I will make it as short as possible. I am looking for guidance. I have read the stickies after going through the site. I have been having twitching in my legs for a couple months now. I told a friend of mine who works for a neurologist in...

Venting about familiar stuff & softening resentment with humor.(at least a little)... I logged on primarily to vent....which I intend to do. However....as I was perusing the newer posts, I came across 'Vistra's post about her college roommate coming to visit, and realized that in some...

I am wondering how long it took people here to get diagnosed, or for their PALS to be diagnosed. I have read the "average" in the U.S. is ten months. If you count from when my husband went to a Doctor with the presenting symptom, it was about 11 weeks to diagnosis. If you count from when we...

So here's the lowdown. Last year my husband bought me airline tickets to see a dear friend of mine who has a home in Ireland and will be there on July 12. He was independently able to transfer at the time he bought the tickets. By April of this year, it was clear that he would need more...

Let me preface this by saying how appreciative of any responses I might get. To those on this site affected by als, you are in my prayers every night. You're determination and unwillingness to quit is an inspiration. We lost a good family friend to als and I have a rudementary understanding of...

How do youu all deal with taking time for yourselves? I am not my moms main caregiver and she is still fairly independent right now although she has moved in with my aunt. I go down each week either for the day or overnight and hang out with her. My gram is also having health issues as I am...

I have been a long-time hater of selfie sticks and those who use them. In our national parks it can be hard to traverse the trails because of all the selfie sticks being employed, each of which blocks part or all of the trail. I was sure I would never own a selfie stick. On those occasions...

I have a friend going to Mass. General this coming week. He takes Valium and Inderal (beta blocker.) He sent them his med list and they didn't comment on whether he should continue to take the Valium. He was concerned because it was a muscle relaxant. He is on a pretty heavy dose. When I...