1. L

    strange sympthoms with ALS

    Hi everyone, I truly hope all the best to all of you and families. First sorry for my bad English I have the beginning symptoms of ALS about 6 months before , and diagnosed with ALS 1 months ago by EMG when I visited my neurologist (UMN and LMN he said). My scores ALSFRS-R is 46, only right...
  2. N

    Hello from Greece.

    I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
  3. F


    Hello, I have a question about my condition - I have quite a lot of fasciculations (thighs, calves, shoulders, hands, face, chest, back, little "feelable jolts" time to time on tongue, sometimes even inside of my ear - drum and sometimes I can see flickering in my eyes similar that I see...
  4. S

    Young and really scared

    Hello everyone, First I wanted to say that I do not mean to offend anyone but I am in a scared limbo situation.Ok,I am an 18 year old male and my first symptom was 2 years ago. My right leg felt weak and I was walking weird but then it went away.However, when time was passing by I noticed...
  5. A

    Waiting for Neurology Follow Up Appointment

    First of all, thank you to everyone taking the time to read this. I appreciate and respect your knowledge and look forward to your feedback. I'm not sure where to start. So I will pick last summer, August I believe it was. I got on my bike and couldn't ride for more than a couple of...
  6. V

    Update to a closed thread from January 2018

    I just wanted to hop on and thank everyone who left messages for me regarding my fear of having ALS. I have stayed off the forum as promised but just giving update as some had asked that I do. My neurologist did a upper extremity repeat EMG and NCS and still states findings of bilateral carpal...
  7. bkite

    A Wonderful Memory

    Last major expedition before left foot began dragging. My 3 sons are with me. Bruce
  8. P


    Hello Everyone! This is my first post so bare with me. I'll spare everyone the details that took me from Aug. 2016 to now but as of now my Neurologist believes I may have PLS. I have had one MRI, 2 EMG's, several blood test and my next visit with her is Sept. 25th. I am seeing another...
  9. S

    Very worried

    Hi all, First of all I would like to say sorry for posting this in here. Just don’t have many people to talk to and would like some helpful information. I am a 21 year old female. My mother was diagnosed with ALS in 2013 she was 52 years old. I was mums primary caregiver. It all started in...
  10. I

    Abnormal EMG showing chronic

    Hello all, I want to share back story. I was involved in a motor vehicle accident, I was hit by a drunk driver going 57mph while I was parked. I was wearing my seat belt and sustained damage to my shoulder. With the damage came a tingling sensation all the way down my arm to my fingertips. The...