This is more of a heads up than a question.
I have bilateral AFOs which are Allard toe-off 2.0. They appear to be made of either fiberglass or carbon fiber with the vertical piece welded to the foot plate. I’ve been using them 10-11 months now with great success.
I recently noticed...
Hey everyone,
Sorry to roll a few eyes at the"do I have als question" but I'm a little bit worried and possibly over thinking everything but for the last 16 months I've had symptoms, my daughter was premature due to preclampsia and I was really ill. I have hyperreflexia I put it down to...
This is long, please bare with me
So i have been searching these forums for around 3 months now. I was reluctant to do so because of all the responses people usually get on here like " you dont have ALS" " stop asking Dr Google." And honestly even while reading some of those posts i thought to...
Hello. I want to first say thank you for any information or insight you may be able to give me. I also wanted to say that my thoughts are with you all that have been affected by this disease.
I am concerned due to a few reasons.
About a week ago, I noticed something was "off" with my left foot...
I'm an "old one" in this ALS world. I've been living with this crazy disease now for over 11 years. It all started in 2007 with my left foot while speed walking my neighborhood. It stayed in my lower limbs until about 2013ish, but now I'm just getting to the point I can not type well, feed...
We have been talking about afos recently and I realized the type you have really matters. A couple of people talked about wearing a hiking boot style shoe with theirs for example which doesn’t work with mine because it has a protruding side piece.
I like mine a lot. It is designed to keep my...
First, I would send my heart to everyone here... these past several days have been a real eye opener and I feel any words i mustard up to say do not even touch the bravery and strength I have seen here. My thoughts and wishes are to you all.
So I find myself I'm unfamiliar waters. About a week...
Hey everyone, im new, 30 year old male, and just really need someone to talk to about this. So i went to the doctor maimly because my muscles seem to start hurting quickly when doing tasks sometimes. Also general fatigue. I wouldnt call it a weakness because i never am unable to lift objects...
I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post:
-went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...
I had an EMG test done in 2016 when I developed foot drop and was tripping and occasionally falling. The neurologist didn’t have any concern at that time. He said I had some arthritis. I saw a neurosurgeon and decided to do surgery for foot drop on my L5 section, discectomy she called it...
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