folding

  1. J

    Dynavox Vmax system with mount for sale

    We have a very lightly used/ basically new Dynavox Vmax (series 5) for sale. (the manufacturing date on the device is October, 2009) We purchased it for our son but he is unable to use it and I need to find something else a little more appropriate. It comes complete with: 1) mini-media...
  2. arkallen

    Sprung

    It was more than a little awkward when the rehab engineer who is working on B4 pulled into our driveway unannounced with a new cushion to trial. Awkward because B4 has just returned from several days of modifications in his workshop; and awkward because it was Saturday morning and I had started...
  3. arkallen

    Me-Me, I-Mine, My-My

    21 months into this condition and I fear I am becoming self-consumed. I feel like the Old Testament prophet Jonah, who managed to cram 18 repetitions of the personal pronoun and its derivatives into a mere 5 verses*. (That's a strike rate of better than one me-me, I-mine or my-my in every 7...
  4. shelleynshaggy

    I'm a little jealous!

    I worked yesterday and as usual mom had Jim and the kids. She took them to a local lake where the kids played and caught crawfish. Mikayla even caught a snake in her net (YUCK! - glad I wasn't there for that!) Anyhow, mom called me last night telling me what a good time they had and how much...
  5. M

    Ankle weakness

    Hello, Back again. I am wondering if people here experienced ankle weakness and how that manifested. Those who've read my posts may (or may not) recall I have a 10 month or more history (not sure exactly when things started, but recall some weird muscle spams in my chest area exactly one year...
  6. B

    Children made fun of because of ALS?

    Have any of you with children gone through your child being made fun of at school because the parent has ALS? I know children can be so cruel, after all we can remember our childhood. Right? I was dreading this day and now it has happened during such a stressful and upside down schedule for...
  7. shelleynshaggy

    What a difference a year makes

    Just looking back at the last year - Today my hubby and girls were out raking leaves and playing in the piles and I realized - that was the start of this incredible journey. Tough in hindsight his FTD symptoms started 2-3 years ago, a year ago was the "eye-opener." While raking leaves...
  8. J

    hand, feet cramps

    Hi, I get hand cramps if I am grabbing things too long, like folding laundry, and foot (arches) pain in my legs (not that often). It seems to happen frequently, not constantly. I have the terrible lower back pain, and that seems to cause my legs (thighs) to hurt--not my calves too much...
  9. Geo

    Programs you can join

    For those who are interested . You can join Protein Folding at Home or World Community Grid . These are programs that are using PCs to make a Super Computor to make Lots of Calculations for the discovery of HIV/ Aids and other Diseases Looking for Cures . They use your PC after you join,at Non...
  10. Sammantha

    "The Great Puppeteer"

    Hi everyone i am in good spirits for the moment, i have insurance now and can take care of some things that need to be taken care of! Anyhow, i thought i would write on how i describe what i am feeling with my arm since so many people ask about weakness, wasting and how it feels...
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