1. A

    Symptoms concerns

    I have a long story and I have read the stickies. I appreciate the information. This will be my only post. I just want your advice and expertise. A year ago I woke up with my face numb all over but primarily my right side. I went to ER and checked for stroke. I was not having a stroke. I was...
  2. B

    Possible Onset Bulbar Palsy

    Hello ALS community, my name is Bill. First I would like to say how saddening it is to read people's stories and how brave they are fighting the various symptoms of ALS or other MND's. Good luck and God bless to all of you. My symptoms actually started about 8 months ago wo even knowing it, I...
  3. L

    Question about MIP and MEP

    Hello, my PALS was diagnosed in May and today had his 2nd ALS clinic visit at Texas Neurology. I’m just not understanding the respiratory numbers. His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one...
  4. L

    Weight Question

    I researched other entries re: weight but guess not finding what I am wondering about. My husband is in his 3 1/2 year plus, and now is basically a concentration camp looking individual. I only put it that way as he says that to me that he is. He is skinny, skinny, skinny. Speech slurs, cramped...
  5. swalker

    Wheelchair Troubles

    I went for a magnificent wheelchair ride over the weekend in my Permobil C500s VS wheelchair. I rode the Gondola to the top of Vail Mountain and took the ride down Village Trail. It is about a 7 mile trail all on dirt roads. The weather was great and I truly enjoyed myself. During the ride...
  6. L

    Under investigation for ALS

    Need some insight on if this sounds like anyone's experience with ALS. My legs have been achy as if I had the flu for about 6 months. 3 months ago the achyness moved into my lower back and then my upper back then spread to my arms. 2 months ago I began to feel weak. Initially I thought the...
  7. J

    Any advice/Looking for someone

    Looking for a lady named lisa that's been diagnosed. Her als presented with arm pain and then weakness and atrophy of the shoulder. I've searched and searched I can't remember her user name.. thanks for anyone that knows..
  8. C

    Advise on these symptoms thank you.

    Hi I am a 41 yr old male. I would like your advise on a set of symptoms that seem to at least put ALS as a possible diagnosis. I was diagnosed with ME./C.F.S in 1999 typical symptoms , at this time I did have muscle twitches for a few months shortly after onset, thought nothing of it. Late...
  9. D

    Could this be anything else than ALS?

    Hi I am 18 years old High school student. It is Like 3 months when my first symptoms has begun. I had a significant weakness all around my body after a flu. I could do everything but it was just hard to do and I was very slow.( I know that this type of weakness has nothing to do with als but I...
  10. I

    Help me , please.

    Our decent into hell began over a year ago. My husband had a severe case of the flu, he recovered , but His voice never did. It became progressively worst. We saw 2 ENT's , one discovered his false vocal cords didn't work at all.They recommended a speech therapist , no results.We then saw 2...