financial

I have looked into this study and had a fairly extensive discussion with the study coordinator at the San Francisco site. I am posting information about this study here in case anyone is interested. Enrollment is still open for this phase 3 study. The study is sponsored by Brainstorm Cell...

I’m 38, married with 3 young children, and I’m scared to the point of falling apart. I will keep the story as brief as possible. This year has been the most stressful of my life. We almost lost my youngest at the beginning of the year and she was in the hospital for weeks. We had major financial...

Hello, I would like to figure out what is going to be the financial side of my dad's illness. My dad has a very good PPO insurance in Illinois, and so far all of his treatments were covered ( when they were approved by insurance. The insurance has only rejected his spine MRI once). What should...

Hi, I'm 30 years old and have been having some symptoms for a few months which are beginning to worry me. I haven't really spoken to anyone about it and it's all a bit scary, so I'd appreciate any input. This all started in January when I noticed a tremor in my hands. It appeared strongest in...

Tonight I found something out that sort of rocked my world because it made me wonder just how blind I can be to who people really are. Due to numerous considerations, I can't break any specifics down in a public forum, but I learned that someone we called a friend for over a decade had in fact...

I have had als for 6 years and vented for almost 3 years. I made this for several reasons : physically (i a basically paralyzed from head to toe), quality of life, financial, insufficient nursing, burden on my family, ready to meet my maker and make me whole again. I am at peace with the...

I'm just curious as to how others have handled home healthcare in the last stages of ALS. My sister receives Hospice care, but they only come out 3 times a week to bathe her, and her needs continue to increase, so Hospice told my brother-in-law that he must hire home healthcare providers for at...

The nurse that came for the initial evaluation was super nice and explained how my mom would get all the equipment she was already using, plus what ever she needs to be comfortable including a low air loss mattress. I was so relived. She also said they have a team who specialize or have...

You can apply for assistance to pay copays up to 15000 dollars if you are a PALS living in the US, on Medicare and have an income below 500 percent of the poverty level https://www.healthwellfoundation.org/fund/amyotrophic-lateral-sclerosis-medicare-access-2/

Well we are at our first Birthday of Lizzy's without Her.. Time will tell how the Kids will do today.. can't help but feel an overwhelming feeling of being completely Alone in the world today.. doing my best to get thru my work day as we all know what a financial burden years of caregiving and...