I have been gone awhile, trying to get my finances and home in order..... I had to put all appointments on hold, i will now have my follow up for EMG and thymoma on the 30th. The doctor already said that he did not think i have Myasthenia and that i do have EMG recorded muscle weakness.
I...
My 62-year-old mother was diagnosed in Jan '08. She was sure she wouldn't live to see my second baby (born 5/1/08) but she has hung in there. Now she only has a little movement of her head and is having trouble getting any food or drink down. She doesn't want any artifical feedings or a vent...
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My mom is 68 and was dignosed with ALS in October 2006. She is very bad now and I think very close to the end. I moved back from CA to WI to be with her, and although she has 24 hour care, I am here, being a caretaker, at her house, 6-8 hours a day. In addition I manage all of the household...
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We moved in with my Mom over a year ago to care for her. She has gone from living upstairs and on a walker when we moved in to being in a wheelchair fulltime downstairs. Our relationship over this past year has deteriorated almost as fast as her body has. I have tried to let her be in control...
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Hi Everyone,
Just wanted to share this with everyone. This was read at my husbands memorial service on 11-14-07 before releasing the doves at the graveside.
This ALS is the beginning of a journey of many changes, and challenges. This disease is a thief, stealing your ability to walk, to hold...
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I am not diagnosed yet but it's only a matter of time. I realize some peole are retired so one a loved one becomes sick they may be more financially secure. We made the mistake of not having disability insurance on our mortage. I was caring for my mother at the time I got sick so do not have...
I was recently diagnosed with ALS last month on July 10, 2006 with hand and arm onset. I would like some thoughts and opinions about how long I should continue to work full time before applying for social security disability. I work in a public health dept as a program manager for HIV AIDS...