finances

  1. 1

    Van tomorrow - quick questions

    let me preface with I've done research on vans but i have a couple questions I need sorted asap because I'm supposed to put down a deposit tomorrow. The van we are going to purchase pretty much has power everything, side entry, removable front passenger seat but the van doesn't "kneel". How...
  2. H

    Diagnosis and What's Next

    My brother had his appointment with his neurologist yesterday to go over the results of his spinal tap (the last test, after a year long testing process). The results of the spinal tap - Negative. The diagnosis - Bulbar Onset ALS. The neurologist explained that he was in a category called...
  3. D

    Going Home/Staying in Hospital on a Vent + What is day to day life like on home vent?

    So I had posted the same sort of thread a while back (March to be exact) when my dad was admitted to the ICU and trached and put on a vent last year in January. It will be a year in the ICU coming up very shortly. They had been pushing to get us out and we resisted as we weren't ready to come...
  4. L

    Babinski reflex test

    Anyone have a positive one? how important its this reflex? my finances its normal.... But I know that might not mean much. We scheduled for more blood work today to check his CPK levels, they went from 11K, 9K down to 5,500..... his thighs are not sore anymore, but knowing the cpl levels going...
  5. R

    Advice needed regarding employment, finances, etc.

    As some of you all may recall, my wife was DXed with ALS. Her symptoms started late last year with extreme fatigue and arm weakness. Today, she cant use either arm, her legs are getting weaker and walks very unstable. Twitching in the neck and general soreness all over has become a staple...
  6. gbrown

    My Road Thru ALS--Long, But My Story

    My Road Thru ALS Gordon Brown August, 2001 Started experiencing falls. Had a few minor falls throughout the Fall of 01’. My legs felt like they were getting stiff. December 2001 Had my first serious fall just before Christmas. Got out of the car and tripped over my feet. Couldn’t...
  7. S

    Checking in and questions about benefits

    Hello Everyone, I just wanted to drop a line and tell everyone hello and stay strong. Thanks to everyone for all the advice and kind words. I have a few questions as I navigate this ALS process. I have been doing some research on benefits however I seem to be getting alot of different...
  8. L

    Too many decisions too fast

    As soon as Dad was diagnosed, Mom told me she couldn't handle all of the medical and financial stuff. I get that. Dad was always the family manager so for her to deal with his illness plus learn all of the new medical "stuff" and take over their finances is overwhelming. So, they moved near me...
  9. N

    finances...where do i start?

    my sister has ALS. probably has had it for 4 yrs. can anyone give me any advice on how to NOT let this financially ruin them? getting ltc insurance, getting home health, getting medicare to actually pay a bill? getting more life insurance? keeping her husband from losing everything? i know...
  10. rose

    accessing 401K

    Maybe this is already understood by most here, and I was even more ignorant than I thought. But.... in case this helps someone else: Shortly after I was told by my neuro not to expect to recover and return to work, I attempted to take out my 401K as a hardship withdrawal. It was a no-go...
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