finances

Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...

Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...

Good Morning, Giving this a try. A little background for my dad: He was diagnosed early months of 2017, receives Social Security Disability. Medicare A and B, recently enrolled into Supplemental Insurance as well. My mother depended completely on his income when he did work. My dad can no...

Hello everyone, I haven't posted very much, but I need to vent a little today. My BF was officially diagnosed with ALS Dec 2016, but had symptoms for at least a year prior to that. Now that he is becoming less mobile, I find it very frustrating that he is not taking steps to make...

My mom has been progressing. She's more fatigued, sleeps more, speaking is hard and saliva gets in the way. I don't mean to be too descriptive but her stools are runny and smell different since last night. Also, she feels full real quick into her feedings some days. So we're back to 3 cans...

This was inspired by recent suggestions made to a tired CALS Please share things you do to make your household run more smoothly. This is not about the specific physical challenges of ALS but about limited time and energy. Some of us do things the way we always did without examining if it...

I'm writing this for the benefit of all CALS and PALS. I've been a CPA for nearly 40 years. Part of this has involved personal financial planning and teaching personal financial planning at the college and university level. PLEASE make sure you have a financial plan and your spouse AND...

We all know how expensive this disease is and how it can devastate one financially. I thought it would be good to start a thread of tips for dealing with the money issues of this disease. I know when I first suspected I had ALS, I needed to decide whether I would take my pension in a lump sum...

My dad was diagnosed with ALS just over 3 years ago and those symptoms have been very slowly progressing. He was more recently diagnosed with FTD, and those symptoms are more of what we are seeing and his doctor's feel has been there before the ALS diagnosis was made. As my parents marriage is...

1. Don't fall and don't take risks that might lead to a fall. 2. Get other conditions treated early. I have hemorrhoids and should have had them taken care of last Spring. Now I'm in so much pain and still have them. 3. Understand progression rates can and do change 4. Get a local...