fibromyalgia

  1. V

    could this be bulbar als?

    hey here! i'm new to this forum but i've been reading it for a long time.. now my concern is about my mother she has been diagnosed with fibromyalgia she has all the pains and the symptoms but a neurologist also had suspected als (that happenned 3 years ago) because she had absence of gag reflex...
  2. M

    A 10yr update and still undiagnosed

    Hello Everyone, I got some personal messages about my status and thought of sharing with you. I am still freaking out over ALS by the way, which is not healthy at all... I'm a 39 yr old man who has been experiencing ongoing neurological/muscle issues for the last 10 years. I will summarize...
  3. T

    Undetermined Symptoms for Over a Year

    Hello to All. Thank You for allowing me to express my concerns and worries. My post will be long, but feel I need to explain, as best I can. I am a 62-year-old female. To list some of my medical issues may be of help: Crohn's/Colitis which is currently in remission; Fibromyalgia; Raynard's...
  4. S

    What is this?! Please help...

    Hi Everyone, This is my very first forum I have ever done. I’ve debated for quite some time now about posting so here goes nothing. I’m a 33year old female. I have 3 small children. I know something is going on with my system but I don’t know what. Last spring I got massive head fog and body...
  5. W

    Confused Abt Limb EMG and Bulbar

    Background: Swallowing difficulties since 7/16. Progressively worse to where I'm now liquid diet only. Weight loss stabilized around 60 pounds (dx esophageal motility disorder unknown origin by Mayo GI). Symptoms progressed to jaw, neck, lips, face & tongue: cramping, pain, weakness, weird...
  6. W

    Bulbar?

    I've read the primer thread and am not sure what to do with my symptoms: Symptoms began with swallowing problems last July. I'm 43 y.o. and have been an active athlete my whole life. Initially diagnosed esophageal motility disorder of unknown origin. Barium swallow was normal, manometry showed...
  7. G

    Scared I have ALS

    Hello, I'm sorry to be posting and taking up your valuable time. I have read the sticky however have a number of ongoing symptoms I am very concerned about. Apologies for the long post but I wanted to explain the situation from the beginning. This all started after I had my daughter in...
  8. KimT

    Dolphin Mattress or Pro Bed

    I've been trying to be proactive in getting my hospital bed. I'm already in a great deal of pain and I've had an adjustable bed for reasons other than ALS (fibromyalgia and neck injury.) Does anyone have experience with Dolphin mattress or Pro Bed. The pro bed is a complete system and turns...
  9. KimT

    Ordering Wheelchair

    The guy from Mobility Works called tonight. After my PT eval. and his measurements, he informed me that I'd be getting a Permobile M-300. He said I had to pay for the lift function up front and then try to get reimbursed from Medicare. He didn't order a ROHO seat and I told him I needed one...
  10. S

    Newbie here

    Hi! I'm Sophie and I have fibromyalgia and benign fasciculation syndrome. I also have finger muscle weakness due to an unknown cause, (emg next week.) I also have generalizrd anxiety disorder which disturbs my life quite a lot. I thought that since I have given many tips how to reduce anxiety, I...
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