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  1. starente15

    Questions for Clinic Visit #2

    Good morning everyone. We have our second clinic visit next Friday (was supposed to be in February but was moved up due to what seems like quicker progression). I was wondering if there were any questions I should be thinking of. I go with a list to ensure we get as much info as possible but...
  2. C

    New Forum Participant

    Hi, All, I've been a member of the ALS Forums for a while and even posted a question or two. But this is the first time I've posted to this subforum. I'm the primary caretaker of a good friend of mine, Patti. She was official diagnosed in November 2013, and she's been living with me since...
  3. HeatherFeather

    I feel so DUMB or The trials and tribulations of a fairly new caregiver :-(

    ARGHHHHH! Sorry - just had to let that one out! I've been taking care of DH only for a very short while so far, compared to soooo many of you seasoned CALS. He was diagnosed end October and has been getting worse so very fast so it's only been 2 months and a bit. Here's why I'm saying I feel...
  4. starente15

    First fall

    I'm freaking out. My dad fell to his knees getting out of bed this morning. I didn't see it nor did my mother. He said it's the angle he's on that caused it. I asked if he could swing his legs around and put them on the floor first and he said "if I can sit up." I had no idea that was an issue...
  5. T

    Swollen Feet

    Hi all... Happy Holidays! I have had extremely swollen feet for the last couple weeks. The tops of my feet almost look balloon-like along with my ankles. Also feet feel rather cold. I fell a few weeks ago and cut the top of my left foot. It is not healing fast like I normally do. I assume...
  6. M

    A Little Nervous in North Texas

    Hi all. I discovered this forum while looking online for conditions that could imitate ALS. My current neuro thinks I may have ALS but wants me to seek a second opinion at a top center in Texas. At this point I do not know what to think. Obviously I hope my neuro is wrong. I am a 49 y/o...
  7. tripete

    First Visible Muscle Wasting

    Noticed my first muscle wasting in my left foot today - I broke down. It is so difficult. I was looking at a nice thread this morning on tips and tricks to help with ALS, when I saw things about wheel chairs and so on my heart just fell. It is so hard to believe it is actually happening.
  8. S

    Two Falls

    A member of our community, Lou Ferrari, just fell to ALS after a seven month struggle. He was only 52. He was a fierce competitor. At our October walk my team raised $20,000 to come in second place. Team Ferrari came in first with $75,000! He will be missed. Also, I fell for the first time...
  9. hn7609

    How is this right

    At my last clinic visit the Dr. wrote a prescription for my feeding tube supplies and set me up with the provider that they use. My first delivery came a few weeks ago and consisted of 5 cases of osmolite 1.5 as well as a box of 100 drain sponges. Today I received my explanation of benefits...
  10. Music67

    Fell down & couldn't get up!

    I walked across the street yesterday, like I do everyday, to get my mail and as I was wearing my slippers rather than my ankle-to-foot brace as I should have my left foot which suffers from drop-foot caught itself on a rock and I took a tumble onto my neighbor’s lawn. I wasn’t hurt but rather...
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