Good morning everyone. We have our second clinic visit next Friday (was supposed to be in February but was moved up due to what seems like quicker progression).
I was wondering if there were any questions I should be thinking of. I go with a list to ensure we get as much info as possible but...
Hi, All,
I've been a member of the ALS Forums for a while and even posted a question or two. But this is the first time I've posted to this subforum.
I'm the primary caretaker of a good friend of mine, Patti. She was official diagnosed in November 2013, and she's been living with me since...
ARGHHHHH! Sorry - just had to let that one out!
I've been taking care of DH only for a very short while so far, compared to soooo many of you seasoned CALS. He was diagnosed end October and has been getting worse so very fast so it's only been 2 months and a bit.
Here's why I'm saying I feel...
I'm freaking out. My dad fell to his knees getting out of bed this morning. I didn't see it nor did my mother. He said it's the angle he's on that caused it. I asked if he could swing his legs around and put them on the floor first and he said "if I can sit up." I had no idea that was an issue...
Hi all... Happy Holidays! I have had extremely swollen feet for the last couple weeks. The tops of my feet almost look balloon-like along with my ankles. Also feet feel rather cold. I fell a few weeks ago and cut the top of my left foot. It is not healing fast like I normally do.
I assume...
Hi all. I discovered this forum while looking online for conditions that could imitate ALS. My current neuro thinks I may have ALS but wants me to seek a second opinion at a top center in Texas. At this point I do not know what to think. Obviously I hope my neuro is wrong.
I am a 49 y/o...
als
arm
atrophy
back
battery
bfs
biopsy
claw
confused
cramping
cramps
diaphragm
emg
fell
finger
foot
friend
hope
hours
improvement
info
manual
muscle
muscle twitching
muscles
neurologist
pain
problem
reading
story
symptoms
tests
thumb
twitching
wanted
work
wrist
wrong
Noticed my first muscle wasting in my left foot today - I broke down. It is so difficult. I was looking at a nice thread this morning on tips and tricks to help with ALS, when I saw things about wheel chairs and so on my heart just fell. It is so hard to believe it is actually happening.
A member of our community, Lou Ferrari, just fell to ALS after a seven month struggle. He was only 52. He was a fierce competitor. At our October walk my team raised $20,000 to come in second place. Team Ferrari came in first with $75,000! He will be missed.
Also, I fell for the first time...
At my last clinic visit the Dr. wrote a prescription for my feeding tube supplies and set me up with the provider that they use. My first delivery came a few weeks ago and consisted of 5 cases of osmolite 1.5 as well as a box of 100 drain sponges. Today I received my explanation of benefits...
I walked across the street yesterday, like I do everyday, to get my mail and as I was wearing my slippers rather than my ankle-to-foot brace as I should have my left foot which suffers from drop-foot caught itself on a rock and I took a tumble onto my neighbor’s lawn. I wasn’t hurt but rather...