feeding

  1. F

    My journey, more questions. :)

    Hi everyone and Happy Memorial Day. As time goes on, it seems more questions come up. My neurologist retired so I'm in between providers. So, far, what has changed the most is my right hand/arm. It's getting harder to turn the ignition key, can't hold the coffee pot really anything that...
  2. S

    Not Enough Calories

    Tom had a PEG tube put in 3 weeks ago. The dietician and the speech therapist both encouraged him to take as much by mouth as possible. The dietician wants him to have 2000 calories a day, half from regular meals and half from Ensure, either by mouth or by tube. He started out well, drinking 3...
  3. Michellesews

    Hospice...how to know when it's time to call?

    My PALS (husband) can no longer stand at all. He does not want a feeding tube or trach but uses a Trilogy. He says he's afraid of choking to death or starving to death. He can still eat but must do so very slowly. I don't want to jump the gun...but when is a good time to call in Hospice...
  4. F

    Feeding Tube Formulas More Susceptible to Clogging?

    Hi All! I am new here and am hoping that you can all help me out! I am a laboratory researcher for a medical device company. We recently started working on a technology for feeding tubes that we are going to test to see if it helps reduce the incidence of clogging. To test it, I need to find...
  5. swalker

    Greetings from Yellowstone

    We are once again in Yellowstone. We made reservations for this trip back in October of 2015, knowing that we could postpone, shorten, or cancel the trip if necessary. As departure time approached, I seriously considered postponing or cancelling the trip, but persevered with the preparations...
  6. D

    Too Full?

    Pals has been on mainly tube feeds for at least 18 months. 2 cans a feeding 3 times a day. of Isosource About three weeks ago he was complaining to the nurse that he was always feeling bloated. Together we decided to go to 2 feeds of 2 cans. today the Hospice nurse was here and he again...
  7. M

    Bringing my next door neighbor to tears

    To those people that know me are well aware that there is no road that I will not take for a good laugh. I have been passing along Chally stories for weeks. I entertain my family and friends on Facebook with little clips from my life and experiences with ALS. There is nothing sacred with me...
  8. Chumpy

    24/7 nausea

    Tube feeding help.... My husband has an ongoing nausea issue, when doing feeding, if I bolus he tolerates about 500ml pushed in about 10 minutes but only twice a day. He stays nauseated all day. Taking 2 different meds for nausea already. Not enough nutrition. We've tried slower over night with...
  9. S

    Early Bi-Pap

    Hubby had an episode of extreme (even more so than usual) fatigue for about a week. On Thursday he would not eat or drink anything and laid in bed all day. Friday morning he was short of breath...not gasping for breath but not able to take full breaths either. We went to the emergency room at...
  10. V

    New Tube

    My dad just got his PEG tube yesterday but was wondering about something. We have noticed whenever we go to do a feeding(before we start) that in the tube, between the clamp and where it exits the stomach, there is a little bit of stomach contents that has come out. Is this normal? I just...
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