feeding

  1. swalker

    Greetings from Yellowstone

    We are once again in Yellowstone. We made reservations for this trip back in October of 2015, knowing that we could postpone, shorten, or cancel the trip if necessary. As departure time approached, I seriously considered postponing or cancelling the trip, but persevered with the preparations...
  2. D

    Too Full?

    Pals has been on mainly tube feeds for at least 18 months. 2 cans a feeding 3 times a day. of Isosource About three weeks ago he was complaining to the nurse that he was always feeling bloated. Together we decided to go to 2 feeds of 2 cans. today the Hospice nurse was here and he again...
  3. M

    Bringing my next door neighbor to tears

    To those people that know me are well aware that there is no road that I will not take for a good laugh. I have been passing along Chally stories for weeks. I entertain my family and friends on Facebook with little clips from my life and experiences with ALS. There is nothing sacred with me...
  4. Chumpy

    24/7 nausea

    Tube feeding help.... My husband has an ongoing nausea issue, when doing feeding, if I bolus he tolerates about 500ml pushed in about 10 minutes but only twice a day. He stays nauseated all day. Taking 2 different meds for nausea already. Not enough nutrition. We've tried slower over night with...
  5. S

    Early Bi-Pap

    Hubby had an episode of extreme (even more so than usual) fatigue for about a week. On Thursday he would not eat or drink anything and laid in bed all day. Friday morning he was short of breath...not gasping for breath but not able to take full breaths either. We went to the emergency room at...
  6. V

    New Tube

    My dad just got his PEG tube yesterday but was wondering about something. We have noticed whenever we go to do a feeding(before we start) that in the tube, between the clamp and where it exits the stomach, there is a little bit of stomach contents that has come out. Is this normal? I just...
  7. B

    Weight update

    All of you were so supportive to me when I had that long hospital stay back in December for the placement of my feeding tube. Just wanted to let you all know that the first of the year I had dropped from 142 lbs down to 129 lbs. happy to report that I have gained all the weight back I lost. Back...
  8. D

    Thankful for advance directive

    [I'm posting this again without my original closing sentence that someone thought was religious. I'm not religious, and nothing religious was expressed in my post or in any replies before the post was removed. But I guess there's no use quibbling with a censorious site moderator who thinks I...
  9. D

    You never know in life

    From the first mention of ALS, I believed my wife would not want to live locked in, and it came as no surprise that when she prepared her advance directive, she wrote that she did not want anything done or omitted by her doctors or nurses with the intention of taking her life, but that she...
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