feeding

A few days ago, Tom told me he woke up and didn't know where he was. I didn't pay much attention because he has done this in the past...long before ALS. But then Friday night he woke me up and asked me if I heard music. I did not and my hearing is much better than his. Yesterday morning he tried...

The past week has been rough he seems to have declined. His speech is almost gone . I had to translate for him at the doctor on Monday. Luckily his eye gaze computer should be here next week. Since last week he's started sleeping so much more during the day. Better than he sleeps at night...

What is the best formulas to use in your peg?

I am getting some mixed signals from Tom. He has never been one to express his feelings so he wouldn't necessarily say what he feels. We have in the past discussed that when he feels like it is all too much and he is ready to go, he can stop with the feeding tube and allow nature to take it's...

So here's the lowdown. Last year my husband bought me airline tickets to see a dear friend of mine who has a home in Ireland and will be there on July 12. He was independently able to transfer at the time he bought the tickets. By April of this year, it was clear that he would need more...

Just curious if there are such trials, thanks!

Previously I took Ibuprofen when needed. Now I can not swallow the Ibuprofen... just got a tube on the 14th. We are learning to use it. I have back pain and shoulder pain, severe and exhausting... no recent injuries. Several injuries years ago. Lived with these pains for years, but now I am...

Hi all, my first forum post... just joined today. I had a PEG tube installed while undergoing throat cancer treatment. No ALS, but this appears to be the most vigorous PEG tube forum I found. Anyway, after the initial surgical pain had subsided (about 1.5 weeks), I was bothered by the weight...

The experts and the different websites that we read will all tell us that the malfunctioning motor neurons and subsequent muscle wasting is not painful. And while technically this is true it is also misleading. As in my experience ALS is very painful. Physically - We go through excruciating...

I've had ALS for a little over two years, am about to move in with parents, who are elderly, because it's getting harder and harder to live on my own. I can still do things for myself, tho wheelchair bound, but am also losing strength in my dominant hand. (Absolutely no bulbar symptoms I've...