feeding

  1. S

    If only our minds could escape for a little while!

    My sweet PALS got me a spa package for my last birthday. He knew I wasn't thrilled about turning 29 again, lol! I went today. It was really awesome. 3 hours of pampering. The problem is I just can't seem to turn off my brain... I tried my hardest to relax and just enjoy it but my thoughts...
  2. M

    "How's your mom?"

    Does anyone else struggling with answering this question? Whether it be your mom, dad, husband, brother, sister, etc.? This may seem like a strange post but I have been struggling with this lately. I have a wonderful support system with family, church family, and friends, who genuinely care...
  3. C

    HELP! is it time to pull the plug?

    hello my grandmother has had ALS diagnosed for 10 years. the last 3-4 years bed ridden no voice maybe 1-2% no movement , constant aspiration from food and water because she didn't want feeding tube and enjoys eating. she is 78 years old she now has severe pneumonia from aspiration and in the...
  4. Duker52

    Respiratory Failure 101

    I don't mean to be morose, but this is something I know only bits and pieces about. Not to offend anyone, but my greatest fear is losing control of my extremities and not being able to move. I want to die of respiratory failure long before that time comes. My respiration three weeks ago was...
  5. Duker52

    Feeding tube tomorrow

    Well, the day is fast approaching -- tomorrow I get my feeding tube. I have Bulbar Onset, but can still swallow. My spouse, neurologist, and friends have all said to get it before you need it. So I am bowing to their advice and getting it out of the way. Would appreciate any words of wisdom...
  6. S

    Feeling helpless

    Hello, I've been following this forum for quite some time but have never had the time to share. my husband was diagnosed with ftd 2014 ALS june 2015. As of this morning he refuses any help with breathing issues..no oxygen no BiPAP no doctor visits no showering it's been almost 5 days again...
  7. W

    Hello from Colorado!

    Hi everybody! I haven't posted too much but I've come to this website many times over the years whenever I wanted to see how other people have dealt with the same issues we've faced. I'm a CALS for a (as of Monday) 45 year-old man who was diagnosed right around this time of year 2011. This...
  8. J

    New PEG Question

    Hi, My husband just had his tube placed on Monday so this is new to us. Is it common for contents to stay in the tube? He seems to think that in hospital when they gave him a feeding the tube was clear. But now that we're home and I give him a feeding the tube is not empty afterward. Is...
  9. M

    Is my mom giving up?

    This is my first post. My mom was diagnosed with ALS in March of 2015. It is difficult for me to see her progress as we live 600 miles apart. She told me before I got there to be prepared as she had really declined. But when I saw her I did not think her "decline" was as bad as she made it...
  10. F

    Steps to take to end my life sooner

    According to my Neurologist, I am progressing fast. I was officially diagnosed with a second opinion on June 8th. I turn 65 in November, have a wonderful husband, two adult children four grandchildren, and excellent friends. I have had a good life; however, I do not want to continue living this...
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