Hi all! My mom was diagnosed with ALS in October of 2014. Through research, she discovered a link between ALS and Lyme. She got tested and sure enough has LYme. She started IV antibiotics and we thought would help. We were all hopeful until very recently.
She is immobile from the neck down...
Hi Everyone, after battling skin problems where my peg goes into my stomach for years (with so little help from any professional, although I begged at times!) Its so healthy now!
I hope this helps some of you. I know I put off having a peg initially due to the stories I'd read about how a...
So, as you know, my mom was going to go to Mexico to compare and weight her options on both sides of the border. She is still there, but will return after Christmas for her clinic day Jan 4th. As of right now, she wants to come and go until she is no longer able to, but has decided she wants to...
My sister-in-law's doctor just prescribed hospice care and said she needs care around the clock. We have home care coming in to her apartment twice a day but need to get her into a nursing home right away.
Because she has a feeding tube, a nursing home is the only option, sadly.
Does anyone...
I recently visited my sister, who has had ALS since last December, and I was shocked at the progression over the two-month period since I last saw her. She can no longer walk or talk, her hands are clawed, and her dementia seems to be advancing, but her weight loss seemed especially alarming...
Hi everyone. First, thank you so much for this forum! I've been reading a lot in the last several days and now feel ready to ask some questions. Forgive the lengthy backstory, but I feel like it might be important.
My 72 yo father-in-law began having difficulty swallowing followed by...
als
caregivers
clinic
coughing
father
feedingfeeding tube
mucus
neurologist
pneumonia
possible als
questions
reading
speech
stroke
swallowing
symptoms
symptoms?
tests
vacation
weight loss
worry
I almost posted this in the Tips Tricks and Gadgets forum, but decided to stick with this one.
Starting Tuesday, you can enter a contest to win a playtex ventaire bottle and the adapter tip which lets the bottle be used for gravity feeding.
The advantage of this bottle over using the...
Hi everyone, I was torn as to which forum I should post this in. When I scroll down the PBP Forum, it does not seem super active. It was a toss-up between the PALS forum and this one, so I'm putting it here. If a moderator wants to move it, that is a-okay with me.
My blog is mostly about...
Hi everyone, I just put up a new post with a new tip (which is working well for me) for marking syringes used for meds for easy identification.
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