feeding

I can eat soft food but it's getting more difficult so I'm turning more to puree ing . I'm having trouble with the consistency of certain foods. I tried pureeing instant oatmeal this morning but it was too gritty. I have a vitamix and had added cream and flaxseed oil. Any ideas? I have a...

Hi everyone, I've not been on much lately, and I wanted to share that I got a new low profile peg tube that does not have a balloon. The manufacturer does not state specifically anywhere in their literature (that I can find) how long it is supposed to last, just that it is potentially...

I remember my husband telling me early in the course of this disease that when he could no longer feed himself our days of eating out together would be over. He said I should go, but he would not be fed in public. Last night, for the first time, he allowed me to finish feeding him his dinner as...

Hi folks, just a note to bring you up to date, last night had a full meal for supper, shepherds pie, large bowl of ice cream and a glass of Pepsi. This morning a large bowl of fruit cocktail, not bad for a guy that had a feeding tube put in a year ago because I could not chew or swallow. My...

Hi, please bear with me as I post my rambling thoughts on an issue I am going through at the moment. Unfortunately the time has come to get a caretaker for my partner for 5-6 hours a week. He has finally agreed to receiving all the Jevity 1.5 that the nutritionist prescribed (he had resisted...

I posted about this bottle on the tips tricks and gadgets forum, but wanted to put a follow up post here. The caps I got for the bottles do fit with zero leakage, so that way no danger of a mess if the bottle gets turned upside down in your bag if you're out and about. Welcome! | Tube Chic |...

OK, I know this has been a risky, and possibly stupid decision, but I just am having the hardest time agreeing to the feeding tube. My doctor has been after me for over a year to have it done, but even though I understand the risks I keep resisting. I can still eat normally with only...

I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...

Its nice to have special friends who put themselves to a great deal of effort to arrange special trips out making wonderful memories. I had a wonderful trip out to London Zoo with family and friends. Feeding the Giraffes was amazing, they were such beautiful elegant girls. My husband and 4 year...

I feel the need to shout a great big " thank you Rose". This morning Steve woke to find blood around his stoma. He admitted to me that he has had issues with blood and yellow stuff around it. I was very uneasy, as I also found a bunch of scrapes and cuts on him. He has had a couple of falls...