feeding tube

  1. H

    Another question...

    Everyone here was so helpful with my other question that I am hopeful someone might be able to help me with another issue. After getting my feeding tube I have found that I have a major increase of gas which is resulting in belching and flatulence. Luckily there is no odour but it is still very...
  2. M

    Not sure how to handle this

    My mother passed almost 2 months ago from ALS. I was a caregiver for her and she was hospitalized for a long time with a feeding tube and traecheostomy....she suffered tremendously. The decision to be taken off the vent was hers and we were with her when she passed....when I close my eyes I see...
  3. M

    Advise on what to say, what to do to help

    Hi Everyone. My boyfriend's mother has ALS. He has handled well accordingly to the circumstances until recently as her progression has gotten to a scary point. She has a feeding tube, lots of mucus, and she can no longer talk clearly. I feel horrible for him and his family and I often have no...
  4. zoohouse

    Tim is sick

    Monday evening Tim started complaining of abdominal pain. This would be the forth time with the same symptoms, and I had managed them myself the last 3 times. This time even after having 2 BM's he continued to have pain and nausea. I had aspirated everything out of his stomach via his feeding...
  5. D

    Peg feeding tube advice please

    I'm a bit worried about getting a PEG. I'm having trouble with liquid choking often. Surprisingly OK with coffee 😃. Any advice would be appreciated
  6. zoohouse

    Starting to use his feeding tube.

    So Tim had his feeding tube put in 2 years ago as his breathing was deteriorating quickly in spite of the fact that he was still mobile. He had it changed to a low profile Mic Key which was great and just needed to be flushed with water to keep it open. On the odd time that I forgot to give...
  7. S

    Father newly diagnosed with bulbar ALS

    Hi everyone, I have recently found out my father has ALS. He's had it for about a year and a half now but they were treating him for something else that wasn't terminal. I live in Halifax and he lives in Ontario so I was unaware of any changes happening with him except for his slurred speech...
  8. Z

    Final stages without feeding tube

    Hello, this is a long time coming in joining a forum-been dealing with ALS for 5+ years. First as caregiver once a week and now a visitor to the nursing home. My aunt was diagnosed in late 2009 and is in her final stages of the disease. We have noticed a sharp decline in her breathing lately...
  9. Nuts

    Update on Max

    I just heard from Sandy, who said I could share, that Max has decided to get a feeding tube. He checked into the VA Medical Center yesterday and is being showered with attention. They expect the surgery to be done today or tomorrow. They know everone here is thinking of them.
  10. Q

    Tips for Hosting a Friend with ALS

    A friend with ALS is traveling cross-country to visit for a few weeks. She is using a wheelchair and a feeding tube. But she is very modest when I ask what I can get ready in our home to help make things easier. I was hoping some in this forum may have some good ideas or tips. Other than a...
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