feeding tube

  1. S

    Father newly diagnosed with bulbar ALS

    Hi everyone, I have recently found out my father has ALS. He's had it for about a year and a half now but they were treating him for something else that wasn't terminal. I live in Halifax and he lives in Ontario so I was unaware of any changes happening with him except for his slurred speech...
  2. Z

    Final stages without feeding tube

    Hello, this is a long time coming in joining a forum-been dealing with ALS for 5+ years. First as caregiver once a week and now a visitor to the nursing home. My aunt was diagnosed in late 2009 and is in her final stages of the disease. We have noticed a sharp decline in her breathing lately...
  3. Nuts

    Update on Max

    I just heard from Sandy, who said I could share, that Max has decided to get a feeding tube. He checked into the VA Medical Center yesterday and is being showered with attention. They expect the surgery to be done today or tomorrow. They know everone here is thinking of them.
  4. Q

    Tips for Hosting a Friend with ALS

    A friend with ALS is traveling cross-country to visit for a few weeks. She is using a wheelchair and a feeding tube. But she is very modest when I ask what I can get ready in our home to help make things easier. I was hoping some in this forum may have some good ideas or tips. Other than a...
  5. H

    episodes

    :?:I have a feeding tube (2 years), laryngectomy (1 yr.), no trac, use supplement. Have episodes of neck spasms, excess saliva, sometimes diarrhea, usually excess bm, since I don't go daily. Sometimes because of stomach burning, take antiacid. Seems to shorten duration. I think its part of...
  6. tripete

    Fighting, Not Giving Up

    These two terms, Fighting and Not Giving Up, are thrown around a lot with this disease and because of another post I have been giving it considerable thought. For me the progression in my limbs and head have been less pronounced than my breathing. Apparently have breathing onset make me "unique"...
  7. D

    Attention California Residents

    To California residents who are on hospice or will need hospice services in the future: Below is the text of a letter I sent to the Director of the California Department of Public Health (CDPH) requesting clarification and enforcement of existing regulations that are being routinely ignored by...
  8. sdpscl

    Introduction & Advice on Tracheotomy

    Hi Everyone, I've been a member for a few years now. I feel a little Embarrassed that I've never posted anything until now. I have gotten a wealth of information from everyone. Here's a quick rundown about me. I'm 58, Married to my high school sweetheart for 36 years. I was diagnosed August...
  9. Nikki J

    I am glad I got my....

    This thread is for PALS to share what benefit they see from having some kind of ALS "add on" Such as power chair bipap feeding tube. Yes maybe it seems like propaganda but I often see PALS post that after hesitating they are glad to have a certain thing I am glad I got my afo early. It helps me...
  10. tripete

    DPS - PEG Seurgon

    I had my visit this morning to discuss getting the DPS (Diaphragm Pacing System) installed. For those who do not know this is where they surgically place electrodes on your diaphragm to stimulate the muscle. Wires come out of the side of your stomach and attach to a small box that controls the...
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