feeding tube

  1. D

    Don't know what to wish for our friend

    Our friend was diagnosed in 2012. He has had a few falls, one with serious head injury about 16 months ago (subdural and subarachnoid bleeds). His ALS has progressed to the point that he cannot use his legs and arms, but can use it hands a very little bit. He he has a great attitude and is...
  2. Bookay87

    What is PEG?

    Sorry I'm new to all this. What is PEG? Is it the feeding tube thingy?
  3. Jeanau

    The hospital and my PEG

    I had my PEG inserted on Thursday morning and came home from the hospital the next day. That 30 hour stay taught me some important things and made me really wonder about and rethink my approach to my ALS. First of all, no ALS patient should ever be in a hospital alone. We're simply too...
  4. E

    Bulbar onset diagnosis, August 2014

    My father in law was diagnosed with bulbar onset ALS in August of 2014. His first symptom was slurred speech, until the past 6 weeks he wasn't too bad. Now, absolutely to voice, completely limp left arm, chokes on anything and everything with a limited ability to cough, can't keep his mouth...
  5. B

    Need your help

    I just found out that another man about 12 miles down the road from me has ALS. He was diagnosed 18 months ago. Much older than me, 79, however he is bulbar. He got his feeding tube at the local community hospital, really not more than an urgent care. We live in a very rural setting and he lives...
  6. S

    Coming off bipap?

    Hi everyone! My dad got his bipap about 10 days ago (last visit in Sept his spir was at 55, most recently was at 35) and as expected he has had major anxiety due to air hunger so he also got xanax. He's had a number of 911 calls and a few er trips before the bipap so once he got it even though...
  7. C

    What stage are we in?

    I am new to this forum and I am looking for answers. My brother was diagnosed in Aug. 2015. I have taken the lead in coordinating his care. I suspect he is VERY far along in this disease despite the fact that 6 months ago he thought he'd just pulled a neck muscle while golfing. His doctor...
  8. M

    Trach - pros/cons

    Hello friends in common! My husband has Bulbar onset ALS diagnosed 4/2013. Has a DPS and feeding tube. Eats through tube, can still talk some, can walk to the bathroom (with leg braces) with walker otherwise needs the power chair. Is all there mentally and a very intelligent man. His...
  9. C

    Helpless and scared

    My mom was diagnosed with FTD in February of this year and then diagnosed with ALS in September. We were told that it's rare for the FTD to happen first but not unheard of. We started noticing changes about two years ago and after taking her to numerous doctors we were told its FTD. I feel like...
  10. M

    Total Parenteral Nutrition

    Can anyone tell me about this? My MD son asked if I wanted this at some point. Seems to be more than a feeding tube. Did a search on this website and could find nothing about it! Just looking ahead. Going to attorney tomorrow to modify my health care directive. Thanks. Wendy
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