fear

I don't mean to be morose, but this is something I know only bits and pieces about. Not to offend anyone, but my greatest fear is losing control of my extremities and not being able to move. I want to die of respiratory failure long before that time comes. My respiration three weeks ago was...

Hi wonderful CALS. I know I don't belong here as a PALS but I just have to get your opinions as they are the only ones that count on this subject. My wife and I have been married 31 years. We had a rough patch for a couple of years around our 15th anniversary but it was all worked out. No...

So I am finally doing what I didn't want to do. I've lurked this forum every day for about 4 months now. I have hypochondria and have had bouts with obsession over other various diseases. I've turned out to be diagnosed by none of them. So when I went into my ALS scare I still had a conscious...

My sister just had her 14th severe fall this weekend, and each time she falls with no warning and lands flat on her face. She has sustained bruises and lacerations previously, but this time she fell hard enough on her temple to make her woozy and disoriented (but not unconscious), so they took...

This is a question for both PALS and CALS. It is very rare for Steve to talk about his progression and doesn't like to talk about it at all. I could tell something was bothering him tonight so I asked him about it. He actually told me that he was really stressed out over his breathing and felt...

Hello all, I have read both the stickies and they were immensely supportive. My symptoms match those which both stickies suggest are not indicative of ALS. I would say what first brought me to ALS fear was a twitch in my shoulder just over a year a go now. I entered the dreaded Dr Google and...

Hello, First of all I do not belong here. I registered purely to say thank you for this site and say how disgusted I feel with myself for feeling the way I do. I have health anxiety following a less than perfect upbringing in which my mother was a alcoholic and my father constantly ill with...

3 months ago I had a witnessed grand mal seizure. I thought it was an isolated episode, and didn't think much of it until I continued to have blackouts and had to be referred to a neurologist. He prescribed me seizure meds but I haven't been taking them because I'm scared of the side...

Hello all, First off, thank you for taking the time to read my post and provide feedback- it is greatly appreciated. I'm a 25 year old female and my symptoms started January 2015. It started with fasciculations in my shoulder/ bicep area in my left arm. Then those spread to my bicep. Pretty...

Hi, my name is Miguel, Im from mexico, my father was recently diagnosed with als in march of this year... Me and my family are very desperate because the disease has progressed very fast... he can almost walk and speak, he cant move his hands... and he is very depressed, just as we are.. He is...