fear

Okay firstly I am sorry to whine in here, especially when alot of you are fighting immense battles and im sure it can be easy to lose patience with someone like me. I, like many posting in this section have spent hours trailing the net only to be lead to this site because of my symptoms. I...

Hello, I woke up at 3:00 AM this morning and couldn't breathe. My throat was nearly closed completely. All I could do was squeak in some air. My husband heard me and jumped out of bed to try to assist me. I was in a major panic. I could only get 3 or 4 words out at a time...very squeaky...

Hi everyone. I was doing pretty well over the summer. The flashbacks ended, I still missed my dad but I wasn't obsessing over death and dying every day. I got hired full-time at my job after six months as a consultant so that was great news. Next month, 11/28, will be the one year...

I don't mean to take the place of stickies or step on any moderator toes. If they feel this post is unwise, I will understand and respect their choice to delete it. First, if you are reading this and have not read stickies, I beg of you please to read the stickies first. Truth is, after you...

Hey there, My name is Jordan, I'm an 18 year old and have been browsing these forums for a few months. I certainly do feel for those of you that have been dealing with this disease and I do understand that some remarks I may make are out of ignorance and lack of knowledge. However, I still...

Hi all, My name is Alaura. My very dear grandmother is battling MND. She has a very slowly progressing form of MND and has been battling for over 12 years. Which from my very general understanding is rare as some only get a few months. She just celebrated her 80th birthday last week. The thing...

Hello.. I have been very hesitant in posting something here. I do not want to waste anyone's time but my fear has bubbled over some. So I am 44 m and 'on paper' I always check out healthy at my physicals. I am fairly active with exercise however over the course of the past few years I have...

So for the past month I've been living in fear I might have ALS. I have been having pains in my right hand and a feeling of "weirdness" moving the fingers. There's no tingling and\or numbness, but if feels weird, kinda hard to explain. Also I notice there's a indentation in my right hand muscle...

Hello everyone, My name is Chad and I'm 23 years old. I have no history of ALS in the family but for four years going on five in February have had muscle twitching cramps and tremors. I went to the Mayo Clinic in Rochester in October of 2013 and again in December for my heart issue and had an...

My dad was diagnosed with ALS about a year ago while I was living in out East and they were in the Midwest. I moved home to be close to family, help my mother (as she is helping with my dad and brother with Cerebral Palsy), and spend time with my dad while he was still in good health, or as good...