Hello all and thanks for taking the time to read this post. I'd first like to say that I am not the kind of person that worries about his health and asks questions on forums about stuff. I have read the sticky and still feel I have some real concerns that I'd like to get your opinions on. All...
I finished the Tirasemtiv Clinical Trial.
Two weeks open label, to test reactions.
48 weeks double-blind trial.
An extra two weeks due to scheduling.
My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
ability
arm
atrophy
breathing
clinical
clinical trial
communication
death
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fda
foot
hope
ice
pain
paralysis
progression
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test
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trial
update
wheelchair
I have been under pressure from 2 different occupational therapists, an internist and a physio to get wheels. However I also have one doctor who thinks it's sort of a blanket recommendation and doesn't think it's appropriate for me at this time.
I am still mobile on my own (though slow), have...
I am a 17 year old female. I have had blood tests that came out normal. I went to the ER the other day because I was not getting answers. He did my reflexes and did the babinski reflex. I am unsure of the results of either, he did however suggest I had MS and referred me to a neurologist. I am...
Hello. I'm so sorry for posting in here again but I just must do it.
I was doing really fine for 7 months. I was with my friends, going out, going on a trips... In that time my fasciulations was still with me but only in my legs (calves). They are fine fasciulations, I feel them when I'm...
Hello everyone; I´ll try to be brief. I read the threads, but I have doubts and fear. Sorry for my english, but my native language is the spanish. I´m from Argentina
My mother died of ALS bulbar on september 2015. I´m fisioteraphist, I can see yours sympthoms, your health decrease, you know...
Hello everyone, I started having a problem with fatigue in my right foot while driving to weeks ago, and now I'm getting fatigue in my right arm when I tried to fish in my pond. I have lots of twitching head to toe. I had a clean EMG February 20, 2017, but they were testing for sensory...
Hi Everyone,
I would first like to commend everyone on this forum for their willingness to listen and respond, give advice, and for giving an honest answer where it is due. My heart goes out to anyone who is suffering from ALS and the caretakers whose loved ones are fighting. I grew up with my...
I've read the primer thread and am not sure what to do with my symptoms:
Symptoms began with swallowing problems last July. I'm 43 y.o. and have been an active athlete my whole life. Initially diagnosed esophageal motility disorder of unknown origin. Barium swallow was normal, manometry showed...
I am a 22 year old male with no family history of ALS or neurological disease. I have been to several doctors who have run blood work, a CT scan, and a skin biopsy for my rash. They have all been normal except for a high vitamin b12 level due to multivitamins I was taking according to my...
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atrophy
back
biopsy
diagnosed
driving
early
emg
eye
family
family history
fatigue
flu
headaches
help!
improvement
muscle
muscle twitching
muscles
neurologist
shoulder
stages
therapy
twitches
twitching
work