father

  1. P

    Als and what is not Als

    Hello, I am 32 and have a small story to tell. As far as I understood (I have no physiatric background, I am a pharmacist) als never sets on with feelings such as "tired muscle", or pain, or different sensivity than before to touch. Also, I think i have understood that it is a "all or nothing"...
  2. D

    MND Diagnosis is getting us mad!! pls help

    Hi guys. I am from India and this is regarding diagnosis of my father. He is now 63 years old. It all started about 1 year back when he started complaining about trouble in grasping small objects/ starting car with keys and holding spoons. EMG/NCS confirmed there is a motor nerve problem in...
  3. C

    Overwhelmed

    Kinda the way I am feeling tonight. Lots of suctioning, cough assist, etc... and in between my elderly father is calling and yelling at me because my stepsister hasn't yet signed a document he needs to sell his house. She has to sign off on the half of the house that her mother left in trust to...
  4. kellykago

    Definite Diagnosis

    I received my official diagnosis of ALS on 12/16/16. I knew in my mind that I had it, but was continuing to hope and pray for an alternate diagnosis. I've had some minor progression in my speech articulation and some vocal quality (raspy) changes in addition to EMG findings on my tongue and...
  5. N

    Concerned that I have symptoms of ALS.

    Hello Folks, I am very anxious that I have some of the symptoms for ALS. By the way my father's cousin passed away from ALS. Last Sunday I was walking looking a x-mas lights and my leg felt weak like it lost power. I was still able to walk but it just felt funny. There was also twitching going...
  6. D

    Still concerned

    Hi I am now experiencing a variation in existing symptoms and new symptoms. The initial twitching from May 2015 has pretty much disappeared, unless I have really exerted myself during the day. Any muscle I use fatigues much more quickly. I am a seasoned singer and my speaking voice (despite...
  7. M

    A Necessary Thank You

    I'm a nearly 40 year old man father of two angels. I've been visiting this site for 3 weeks. I was diagnosed with a condition that caused atrophy in my upper right region, so far, plus pain and fascs basically everywhere in August of this year. I'm still being tested because my issues seem to...
  8. J

    Super Scared and Afraid

    Hi All, First off I want to send my thoughts and prayers to all of you on this forum that are suffering from ALS and to all of you that are CALS and have lost a loved one! I was hoping you all could offer some insight and some guidance on what I should do, since you live it on a daily basis...
  9. C

    New to the community - looking for help.

    Hello All, I would first like to thank you for your time and any responses I may get. I'm honored and humbled to be here. I'd like to preface this post with a disclaimer; I am a well documented hypochondriac. Although this disease is not nearly as traumatic as some of you with motor neuron...
  10. J

    I don't know if I should back to neuro.

    Hello all, My name is Josh. I am 39 years old. My family has 4 generations of ALS. My mother has it, my grand-mother died of it, my great grand-father died of it, my great great grand-father is believed to have died of it (but his death certificate says "creeping paralysis") and my mother's...
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