family

My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...

After reading the MY STUFF post it reminded me of a gripe of my own that's been coming up a lot lately. I don't like when people take over a task from me to help me without asking. This is usually friends/family at home. For example if I am at the counter struggling to spoon food onto my plate...

While we may be unable to use our belongings as we once did, some of us do have an opinion on how to dispose of our stuff. In fact, there is the possibility that we would like to retain some things we cannot use well as a connection to our past healthy life. Discuss things with me and you may...

As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...

Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...

My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...

Hello, I've been reading this forum for a few weeks now and I've held back from posting my symptoms but it seems to be progressing so I'm more anxious. I'm 28 year old male and I'm extremely worried that I might have early symptoms of Bulbar or Limb onset ALS. It all started about 7 months ago...

Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...

I just have a couple questions. I realize this is not an anxiety board nor are you all doctors. I have been doing a lot of research online after I had an emg of my left arm. I looked up some things that were on my results and something that kept coming up was ALS. I knew what ALS was before...

Hello Everyone: This is how I basically handle most crisis in my life: How not to say the wrong thing - latimes The gist is, draw a small circle and write the person at the center of the current crisis in the center ring, then draw another ring and write the names of the people most affected...