family

  1. S

    Possible tongue atrophy

    I am a 32 year old male who's been worried I have ALS. I am here because my fears and research keep contradicting themselves. I wanted to ask real people who know. I have been experiencing very frequent muscle twitches (legs and arms) but I've maintained muscle mass and in fact gained so I...
  2. W

    Symptoms? FALS

    Let me start by saying I really hope you all tell me it's all in my head. I've read the sticky thread but I'm still unsure, so please bear with me while I ask for experienced opinions. A little background. A couple years before I was born (I'm 34 now), my paternal Grandmother and uncle (her...
  3. R

    Back on here after a long time

    Hi All, My last post on here was almost 2 years ago, about the time i was having my 4th EMG, which came out clear of any serious issues, i wont lie and say everything went back to normal after that, i did have my bouts of weakness, twitching, new symptoms etc etc but since September 2017 ive...
  4. T

    Deeply Concerned

    I want to keep this thread short as possible- tough to do since my story is long. I have read all stickies and have in fact been lurking on forum for months. I know everyone here my name as creepy as it sounds. I have never felt so deeply empathetic toward a group of people as I now do toward...
  5. KimT

    Random Thoughts About Anything

    Sometimes I feel in a rush to get things done while I can still do them. It's almost like I have two personalities. One just wants to sit around, eat, surf the Internet, and watch TV. The other one wants to publish again, go on a weekend retreat, and buy that ticket to visit cousins up North...
  6. B

    Article about demographics etc for ALS reversals (Dr. Bedlack)

    I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...
  7. S

    Update of double edged sword.

    A very early good morning to you all. If I may reach out to Nikki J, Nikki as promised a further update to our now closed thread of September 2017. Further to your appreciated education, direction and further extensive MND/ALS testing by the neuromuscular specialist at the Walton Centre...
  8. R

    Please help. Very scared

    Hi my names randy, im a 19 year old male with no family history of als ..ive been extremely worried as of lately because i feel i might have als/mnd...it started about four years ago i had terrible anxiety and started feeling tingling and numbness in my left arm and went to my PCP and was...
  9. J

    Easter 2 years ago

    Bob had only been diagnosed about 1 month before Easter. He woke up that morning and decided to go to a flea market, saying that he didn’t know how many more he would be able to do. I cancelled Easter plans with my family so I could go with him. I’m so very thankful that I did. We had no way...
  10. K

    Looking for advice

    hello everyone. I am 28 years old, I have had tingling and muscle twitching in the bottom of my left foot and left calf for over four months. I finally went to the DR. he did a neurological examine. (had me stand on my toes, heels, pushed on my legs, feet, up and down, squeezed fingers etc. He...
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