family

Well, I had a pretty epic meltdown this morning. Nothing all that significant happened, but boy did the flood gates open. DH had just called me to get him up. He asked for a good morning kiss. As I layed my head on his chest for a hug, I just completely lost it. Sobbing tears. The kind...

Hi I'm running a fundraising event for the ALS Association but I'm having difficulty in finding details of how donations are spent. I know from past projects that number are an extremely persuasive tool. Something like: $10 will pay for... $20 would cover... It could be treatment, it could...

Speech problem and several symptoms Hello everyone I’m Korean, male, and 29 years old (born in 1988). And, please understand my lack of English writing skill. Now, I have been experienced in the several symptoms considered to be the symptoms attributed to MND. Please refer to my symptoms...

I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...

my earlier thread on this has closed since it's taken me so long to decide. Maybe a mod can link to it. yesterday I decided it was best for my family to start hospice. My husband is realy struggling with this end stage, and I am hoping hospice support can help him get through this. I get to...

My dad was diagnosed with ALS a year ago, he has respiratory onset. Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he...

Below is a document that i wrote for seminary some years ago. i still hold it to be true although i think it could have been written more gently. i used the same format as the Canons of Dort, because i believe it can be easier to explain things when you say what you do believe and what you do...

My mother has ALS and has developed FTD. I read online that someone with FTD/ALS usually has the c9orf72 gene? And that gene is due to famillia? Please confirm because it is driving me nuts that I might get ALS in the future. No one else in my family has ALS and this past year I did not worry...

Long time appreciator of the resources of forums like this that provide means to help reduce the stress of new and foreign symptoms. 30 y/o male with no family history of ALS. Pre August 2017: I may have had a twitch here or there that never bothered me. I remember at least in May of 2017 a...

Hi! I honestly was very hesitant about making an account on here to just to post to this forum. I was diagnosed with generalized anxiety disorder, and I am well aware that what I am experiencing could certainly just be because of that. However, over the last few days, the thought of ALS or any...