My brother in law was diagnosed just this week with ALS. He currently exhibits slurred speech and left hand atrophy. He is so young though, in his late 30s.
Although we as a family have done some research , I feel like the question on our minds is what now? How do we help support him? How...
Good morning,
I have a family member recently diagnosed with ALS. A few months after this diagnosis, I noticed a very sudden lack of coordination in both hands, coupled with arm pain, some pins and needles, and cramped hands. I had a neuro exam 1 week before onset of these symptoms (was a...
Hello,
First of all I do not belong here. I registered purely to say thank you for this site and say how disgusted I feel with myself for feeling the way I do.
I have health anxiety following a less than perfect upbringing in which my mother was a alcoholic and my father constantly ill with...
I was wondering if anyone out there has experience with a lightweight, foldable power chair? I have been looking on line for at least a week. There are many options, actually, but they vary in pricing and somewhat on cosmetics, power, and weight. My husband is still able to walk, but only...
I would like to sell the following equipment which was gently used by my family member:
Philips Respironics Cough Assist Device 70T with power cord, instruction manual, carrying case and two new (in package) CA 70 series circuits, adult Lg., 6 ft. Asking $550.
Tobii Dynavox I-12 communicator...
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I finally finished reading our Tillie's book, Overcoming Loss by 1000 Deaths. Wow. I started it several times, but wasn't able to read it until I left home for my week of respite. I had to be away from ALS to read her story, and it was incredible. So honest, so intimate, so much truth.
I see...
Can This Be ALS
Hello,
First of all let me start of by saying that I am very sorry that any of are dealing with this disease. Whether you are a family member, a friend, a caregiver or a PAL, my deepest love and sympathy go out to all of you! I pray for a world without ALS!
I read the...
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[I'm posting this again without my original closing sentence that someone thought was religious. I'm not religious, and nothing religious was expressed in my post or in any replies before the post was removed. But I guess there's no use quibbling with a censorious site moderator who thinks I...
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Has anyone done or does anyone know about this clinical trials.
Clinical Trial of Ezogabine (Retigabine) in ALS Subjects, It is on the ALSTDI website and has been forwarded to my PALS by a family member.
I just feel I need to get some of this toxic energy out of me and this is the right place to do it with the right audience. These are some of the thoughts I get on the worst of days.
1) My situation. Just before diagnosis I went through a relationship break-up. So I have no wife, no kids, and...