family member

  1. T

    Undetermined Symptoms for Over a Year

    Hello to All. Thank You for allowing me to express my concerns and worries. My post will be long, but feel I need to explain, as best I can. I am a 62-year-old female. To list some of my medical issues may be of help: Crohn's/Colitis which is currently in remission; Fibromyalgia; Raynard's...
  2. J

    Short survey

    Hello, we are looking for help with a short survey we are creating. This is a university project to help caregivers. It asks about making health care decisions for other people who cannot make their own decisions. Please take a moment to complete the survey. Please have in mind a specific...
  3. A

    New family member

    Hello! My mom, 75, was just diagnosed with ALS. She’s had symptoms since the spring (vocal cord paralysis, difficulty swallowing, difficulty walking) and finally had the nerve conduction test and more EMG/other tests inpatient in a hospital 2 weeks ago, and now has an answer as to why she’s...
  4. D

    Anterior Horn Cell Disease

    Hey Everyone, Recently a family member of mine has been diagnosed with Anterior Horn Cell Disease caused by MND. They have been given a prognosis of two years. But I am having trouble trying to find out information about it, and contrary to what I have found on this forum it seems to be...
  5. A

    family diagnosed. very scared

    hi everyone. i'm writing this with tears in my eyes and i'm reaching out for support. a family member was just diagnosed. i'm terrified, scared, in denial. i don't understand what is going on and i keep breaking out into sobs as i walk down the street. do you recommend a second opinion? what...
  6. T

    ALS Familia question

    My PALS was diagnosed in Sept 2011. I am not aware of anyone else in his family that has or had ALS. His mother passed a year and a half ago and a family member came across an old letter that she had filed away about a family member who had died showing some symptoms of ALS probably 75 years...
  7. D

    New report on California aid in dying law

    According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
  8. S

    Is this BFS or ALS?

    I'm sure a lot of people post here about muscle twitching and I apologize for being one of those people, I have been scouring the internet for answers and I'm deciding to post to see if there's anyone out there who may have some good insight. Thank you in advance. My mother passed from ALS...
  9. NothingButLove

    The results are in - it's C9orf72

    I got a call from the doctor at the clinic today. She reported the results were back from genetic testing. My wife has the defective C9orf72 gene. I have so many thoughts running through my head right now. I could create one big scatterbrained, disjointed post. It's probably best to tackle one...
  10. J

    Unfortunately I may have to walk away

    I can't begin to explain how bad things are now. Jay is so miserable and uncomfortable and angry with me. He's mad at me every single day. He's saying crazy things that he wants to sell the house. He's absolutely mean to me. Picks at me all day long. He's so uncomfortable and in pain. I know...
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