family history

  1. Q

    FTD/ALS - c9orf72

    My mother has ALS and has developed FTD. I read online that someone with FTD/ALS usually has the c9orf72 gene? And that gene is due to famillia? Please confirm because it is driving me nuts that I might get ALS in the future. No one else in my family has ALS and this past year I did not worry...
  2. G

    Dirty but inconclusive EMG, family history, now bulbar symptoms

    Hi, I started a discussion here last September, right after having a mildly (but widespread) dirty EMG. I'm sincerely grateful for the support and encouragement I received from the PALS and other people in this forum, they helped a lot to get me trough a very dark phase of my life. I'm checking...
  3. K

    Fasciculations and the Microbiome

    Long time appreciator of the resources of forums like this that provide means to help reduce the stress of new and foreign symptoms. 30 y/o male with no family history of ALS. Pre August 2017: I may have had a twitch here or there that never bothered me. I remember at least in May of 2017 a...
  4. J

    20 years old male with symptoms indicating some MND.

    Hi, First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...
  5. W

    Symptoms? FALS

    Let me start by saying I really hope you all tell me it's all in my head. I've read the sticky thread but I'm still unsure, so please bear with me while I ask for experienced opinions. A little background. A couple years before I was born (I'm 34 now), my paternal Grandmother and uncle (her...
  6. R

    Please help. Very scared

    Hi my names randy, im a 19 year old male with no family history of als ..ive been extremely worried as of lately because i feel i might have als/mnd...it started about four years ago i had terrible anxiety and started feeling tingling and numbness in my left arm and went to my PCP and was...
  7. C

    Do i have Als?

    Hello i'm a 16 year old boy and i'm suspecting symptoms of ALS. Now i'm not sure if i do actually have symptoms of ALS but it feels like it does. Reasons i could have Als: First of all i feel like my right foot and i guess leg is weaker or just feels different i'm not sure if it is actually...
  8. E

    25 Yo male, got some concerns

    Hi everyone, I want your opinions in my case. I am a 25 yo male, living in Netherlands and for the past 2 months i have been experiencing some symptoms. I know it is almost impossible to have als at my age with no family history, but the anxiety these past months is creating other problems in...
  9. C

    Concerned - advice would be appreciated

    Hello, I come from an ALS family. My mother passed away due to ALS, so did my Aunt, and my Uncle passed away from frontotemporal dementia. I have never been tested but I would wager we are a C9ORF72 family. I have had a fasciculation in my right foot since about age 14. I am 22 now. It...
  10. C

    Worried it could be ALS, seeking help!

    Hello guys, I’m new in here, hope yall doing fine. Well, first, my clinical history. I’ve just turned 22, no family history of als. I’ve been diagnosed with GAD when I was 12 and always been worried about having serious diseases, it started with brain tumors and stuff like that. Ive been on ssri...
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