familial

Hey, folks. I am a 26 year old woman living in the state of Nebraska. I am mother to one beautiful, perfect 14 month old. First, I feel it necessary to commend each and every one of those whom actually "deserve" to be here... and by that, I mean those that have received diagnosis of ALS and...

Hi all, Thank you so much for taking time to read and respond. I️ really appreciate it and all this forum does. I have a question about familial als. My mother in law passed away from als at 57 after a 6 year battle with bulbar als. At the time it was determined that hers was sporadic. For...

My boyfriend's mutation has been identified as C9orf72, He's on Rilutek but progression is quick. Just now I read a script from a palliative nurse who cobbled something together to educate professional caregivers on ALS. There it said, that Riluzol doesn't seem to help the familial kinds of...

Hi folks! I have a good feeling about finding this forum! I already found a LOT of helpful information in the german ALS forum, but there's not a lot of people around "living" in the forum, spending time with each other. And that's what I could use, a community where everybody know's what a bad...

Let me know if this is a dup! https://www.nature.com/articles/550S109a

My PALS, bulbar onset, diagnosed last December has been steadily declining both physically and cognitively. Back in April we enrolled in the LEFFTDS study at the Mayo Clinic because there was a possibility that he had familial ALS due to C9 gene mutation. As part of the study he did have a...

Hi all, Thank you in advance for taking the time to read this. I am going to do my best to keep this succinct. Any help and feedback is tremendously appreciated. Here is what's going on: In 2011 I lost my mother to ALS. In 2009 my grandmother passed away from MS. I am 26 years old, and...

Hey everyboody, I hope you've a good day. I'm from Vienna so please excuse some spelling mistakes. It's about 1 month ago when my grandfather was diagnosed with ALS at about 79 years. His neurologist said it is an exclusion diagnosis because he can't pronounce a word and it might be bulbar...

My father in law was diagnosed with familial ALS in April of this year (3rd generation to suffer from this horrible disease) and he recently lost his ability to walk. He's now in a power wheelchair and they are going to be getting a hospital bed for him soon so he's more comfortable at home...

Hey all, I am quite worried about some localized twitching in my left tricep. All day my tricep more or less just pops away I can see it popping under my work shirt constantly. It occurs more often when my arm is at a right angle (such as when I'm typing) and I find if I stretch out my arm it...