familial

Hi, My husband has the C9orf72 gene mutation and so my children are at risk. They don't want to know. My question is this, Do I tell the family? There are sibliings, cousins, niece's and nephews also at risk and totally unaware of this. They know my husband has bvftd but not that it is...

I'm hoping this is the right forum I'm very sorry if not. My dad was diagnosed with bulbar ALS in April 2015 at 51, and sadly only made it to February 2016. I never really worried that it could be familial, but last night I was up all night thinking about it. He was an extremely heavy drinker...

Hello, I have fasciculations, all over the body, for about a year, I became aware when the diagnosis of als of my father took place. No other family members are affected yet. After 6 months of fasciculation I had an emg, result: fasciculations, and units a little wide in the interosseous dorsal...

Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...

Hi all, First, I want to say that I have the utmost respect for the people here who are battling this awful disease and for their caregivers. I pray for a cure and peace to all of you. I think it is selfless that you give your time to a forum like this. I have been having some concerning...

Hi just joined today. My father died three years ago in May from ALS, then a year ago his brother died from ALS i just found out 2 of my great uncle's died also from ALS I am a 47 year old woman and in the last year or so I have had some weird things happening to me sometimes my speech is...

Hello everyone , nice to meet you guys! Anyways my mom has als , as far a son we know it's not familial , however over the last two months I've had some really weird symptoms , it started with my bicep spasming out on my right arm for about a minute , ever since my bicep has felt sore and tired...

Hello, I am new here, so please bear with me if I break any rules, and feel free to delete this thread. My grandfather passsed away aged ~65 from ALS after having been ill for 4 years. His brother still suffers from ALS, but he was diagnosed much earlier, almost 20 years ago. His illness moves...

Hi my dad and uncle died from ALS and now I’ve had all over muscle twitches for 4 days. I’m 50, a woman feeling no real muscle weakness. About two weeks ago I had muscle twitching only on and off in right forearm for like three days. Then stopped and now this. I have a very stressful job and am...

I was recently diagnosed with Onset Bulbar ALS. The question came up about history and I told the Neuro that my grandfather, a cousin and 2 of my grandfathers nieces had it. My understanding is that to connect it as familial my grandfather would have had to had a genetics test for them to be...