familial als
-
Wife recently diagnosed with familial ALS
Well, I don't exactly know where to begin... So, for the sake of filling up this white box i'm typing in, I sum up where we are at today. My wife, 32, and I, 33, had our first child just shy of a year ago. I work from home and she decided to be a stay at home mom. It all started back in May...- MrCrumbs
- Thread
- advice als arm back breathing cry diagnosed diagnosis familial familial als father insurance planning testing tests weakness wife work
- Replies: 36
- Forum: Newly diagnosed
-
L
Possible familial ALS?
Hello, First I apologize if I'm posting in the wrong section I am new to this site. I am posting in hopes of getting some opinions from those who have ALS or are wondering themselves. My grandmother passed away from the disease In 2001. From what I have read familial is rare but it is...- Lindanickole
- Thread
- als als? arm atrophy back brain burning cold emg familial familial als fingers maybe familial als? mri pain sensitivity symptoms test tests trip tweezers twitch unsure weakness wrong
- Replies: 8
- Forum: Could this be ALS?
-
T
Familial ALS, am I next?
My mother died of ALS 11 years ago. She was told then that she did not have FALS, since there is no other history in our family. 2 months ago my sister was diagnosed with ALS. I’m still in shock and can’t believe this is happening to our family again. Two days after I found out about my...- torteeya
- Thread
- advice als anxiety cramps diagnosed diagnosis eye fals familial familial als family fatigue hope magnesium oil pain shoulder symptoms twitches twitching
- Replies: 3
- Forum: Could this be ALS?
-
D
Familial ALS research
We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...- Dylan
- Thread
- age als als research back biogen breathing cannabis clinical clinical trial diet fals familial familial als family family history kids newly diagnosed oil progression research scared symptoms treatment weakness worried
- Replies: 1
- Forum: Familial ALS (FALS)
-
M
Familial ALS? Scared from symptoms.
Hello, I'm a 35 yr old female. My dad was diagnosed with ALS when he was 33 - and he passed away at 36. My dad had a cousin who also died of ALS, but I know nothing beyond that. I've recently seen a neurologist, due to being referred to one by an Ortho doc, after some strange symptoms. I'm...- Mel35
- Thread
- als als? arm atrophy back burning children clinical clonus cramping dad diagnosis emg fals familial familial als female fingers hope hyperreflexia mnd motor neuron disease mri muscle muscle twitches muscle twitching neurologist night pain paraplegia problem problems scared symptoms tests thumb twitches twitching weakness weakness fingers work wrists
- Replies: 8
- Forum: Could this be ALS?
-
M
Male, 39, non-vet, limb weakness and coordination problems
I've been having some increasingly unsettling coordination and strength problems over the past 9 months or so, and wonder whether anyone here might have some insight. I thank you in advance for your time! Me: Male, 39, non-veteran, non-undertaker, no familial ALS that I'm aware of, one aunt...- MinneSP
- Thread
- als als? back balance brain breathing breathing problems caffeine early emg familial familial als family fingers foot drop muscle neurologist pain problem shaking shoulder speech thumb twitches veteran weakness
- Replies: 3
- Forum: Could this be ALS?
-
D
My son only 19, So worried
My late husband passed away in 2007 at age 52. His father also had "probably als" and passed away in his fifties, so we are assuming it was familial ALS, although his father's diagnoses wasn't definite. My son is a college student, age 19, and under a great deal of stress. He recently began...- DLynnS
- Thread
- age diet early eating fals familial familial als father fingers ketogenic magnesium night onset reading stress student supplements worried
- Replies: 6
- Forum: Familial ALS (FALS)
-
L
Familial ALS
Hello. I posted here sometime last year and unfortunately I'm back again. I'm copying my original post here so I don't have to retyoe it to give the background. The change since last year is that now we have another family member who has been diagnosed at age 63 with ALS. She is my grandmothers...- lda8
- Thread
- age als back children conversation dementia diagnosed diagnosis diet early fals familial familial als family family history family member father ftd genetic health kids neurologist questions tests young
- Replies: 7
- Forum: Familial ALS (FALS)
-
J
Should I Be Concerned?
Hello, and thank you in advance for taking the time to read and possibly give a little guidance ^.^ I've read the sticky, but (must shed some light) I am a hypochondriac, I've been in and out of hospitals in the past for very meager 'symptoms'. As someone who finds something different, I tend...- Jumpy
- Thread
- als back brain clinical concerned cramps diagnosed early exhaustion familial familial als family fatigue hours immediately muscle pain parkinsons shoulder spasms symptoms twitch twitches twitching wanted weakness
- Replies: 3
- Forum: Could this be ALS?
-
The story of Dr Bedlack's tattoo
I heard a shorter version of this in an interview with him a couple of years ago. This is more detailed. It is shared here with his permission My name is Rick Bedlack. In the past decade I have seen more than 1500 patients here at Duke with ALS. Tonight I will tell you about one who left a...- Nikki J
- Thread
- ability als als research arm back bipap clinic death eye familial familial als money muscles onset research respiratory respiratory failure stem cell stem cell research story swallow symptom tattoo wanted weight loss wrist wrong
- Replies: 9
- Forum: Stories of hope
