familial als

  1. P

    Familial ALS and Pain

    Hello everyone, I have been reading some of the messages and posts on this site and I don't seem to find anything about Familial ALS. That is what I am dealing with. My husbands family has had 8 deaths that they know of, since 1951, the 2 most recent where his sister and cousin. The first 2...
    • pfowler44
    • Thread
    • als cramping familial familial als family family history family member heart helpful hope night pain reading worried wrong
    • Replies: 8
    • Forum: New members
  2. L

    Familial ALS

    Well, some scary news yesterday. What my family thought was spontaneous ALS (dad has bulbar'05) has now become FALS with the diagnosis of his 1st cousin. They both go to the same ALS specialist and I talked to him today and he has confirmed the diagnosis. Apparently my dad's preceeding...
    • Leslie
    • Thread
    • als bulbar dad diagnosed diagnosis fals familial familial als family father genetic genetic testing information research testing
    • Replies: 0
    • Forum: General discussion about ALS/MND
  3. sara06

    Anyone with Familial ALS?

    My family has SOD1 A4V. Does anyone here have this specific type of ALS? I believe there is only 300-600 people in the world with this kind. Pretty rare, we must all be related somehow. Just curious to know if anyone has it and if they may be related to any Bly's, or just can't trace their...
  4. J

    Dad seeing a specialist Aug.1st

    Hi, Managed to get an appointment for my Dad on August 1st in Winnipeg with a specialist. I'm really nervous because I told Dad I thought it was important for him to go and see this Dr. I'm scared too. The outcome is going to mean that he (Dad) and we (his family) are going to have to make...
    • JMH
    • Thread
    • als constipation dad diagnose diagnosis emg familial familial als family getting a diagnosis neurologist problems questions scared walker
    • Replies: 2
    • Forum: Current caregivers
  5. J

    My Dad - diagnosed June/06

    Just wanted to mention a few things...ask a few more questions. After seeing a second neurologist who examined my dad and "confirmed" the diagnosis of ALS I have been very busy. Through emails and telephone conversations with the Manitoba ALS Society I have been in touch with a doctor's office...
    • JMH
    • Thread
    • advice als back caregiver dad depression diagnosed diagnosis emg familial familial als family fatigue helpful hope meds mobility mri neurologist night questions supplements testing vitamins walker wanted
    • Replies: 1
    • Forum: General discussion about ALS/MND
  6. J

    Bed, Trach, Suction, boredom. etc...

    Hi All! So, so glad that you are all here. I know I don't post alot but you have all been wonderful...Some may remember, my brother age 46 was diagnosed several months ago with Familial ALS. Long story very, very short (could be very, very, long), his weight dropped from 155 to 107lbs in 2...
    • janicebuf
    • Thread
    • adjustable age als back bed breathing brother chair death diagnosed familial familial als feeding ice info night nurses peg story suction trach vent
    • Replies: 3
    • Forum: General discussion about ALS/MND
  7. rcharlton

    ALS halted in mice study

    My Friend in Med school who is focusing her studies on ALS believes that this study is the most important development in ALS research for some time. The study involved mice subject to a familial form of ALS and the researchers were able to stop the progression of ALS using small interfering...
  8. T

    Brother als 20 yrs, I'm recently diagnosed

    My brother at 13 yrs (early 1980's)had muscle wasting start and is now at the point of hands and forearms wasted, some muscles in legs and back gone.He went from a teenager to now not knowing what he had but this year they finally diagnosed ALS at age 38.He still walks drives, camps and fishes...
    • twospeed99
    • Thread
    • als back brother clinic diagnose diagnosed early emg familial familial als family hope ice kids life mri muscle muscle wasting muscles problem problems scared symptoms teenager test thumb twitches weakness
    • Replies: 18
    • Forum: General discussion about ALS/MND
  9. L

    Is sciatica-like pain ever associated with ALS?

    i am freaking out worried about my father in law. for about a month he's been complaining about a pain starting in the buttock and running down the back of the thigh. his general doctor mentioned sciatica, but the neurologist he saw yesterday didn't even mention the word. didn't say anything...
    • laurajh
    • Thread
    • age als als? anxiety back cramping cramps diagnosed diagnosis familial familial als family father mri neurologist onset pain physical therapy problems running sporadic symptoms testing therapy worried worry
    • Replies: 10
    • Forum: People with ALS (PALS)
  10. D

    Recently Diagnosed; Familial ALS

    hi all! i was posting last year before my mom passed away in january this year. she had als as well as her brother and her cousin. i was diagnosed last month with very early onset of als. i had an mri test and i have no nerve damage. however my doctor at sunnybrook feels that i do have als...
    • DebbieD
    • Thread
    • als brother depressed diagnosed diagnosis early embryonic familial familial als family father kids mri onset problems research riluzole speech stem cells test testing volunteers
    • Replies: 2
    • Forum: General discussion about ALS/MND
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