fals

Hi everyone, I'm so scared that I have FALS. As far as family history with the disease goes, I've lost 5 family members, including my mom (49y/o), my Gramma (69 y/o), and uncle (56 y/o). We have chromosome 9. I've been having symptoms about a week now; I'm a 33 y/o female. In the past, I have...

My mother died of ALS 11 years ago. She was told then that she did not have FALS, since there is no other history in our family. 2 months ago my sister was diagnosed with ALS. I’m still in shock and can’t believe this is happening to our family again. Two days after I found out about my...

Hi all, My 82 year old dad has just (Wednesday) been diagnosed with MND. He has been having swallowing difficulties for about six months, and kept being told by his doctor that it was a sad but inevitable fact of old age. Then his speech started to slur, as though he was drunk, and I insisted...

Good morning everyone, I had to cancel my trip up North because I decided to try the lunasin protocol and just got overwhelmed with all that I'm trying to do. I'm worn out to the point that I just don't know where to place my energy and priorities. I'm at a point where I don't know where...

Hi everyone. I wanted to introduce myself to the forum.. My name is Melissa. I posted a couple months back, or so, in a different section asking "Is This ALS?". Unfortunately for me, my symptoms are progressing in my right limb, and now have noticeable fatigue in my neck and upper back. Typing...

DisabilityReports.org / Home https://alsadotorg.wordpress.com/2016/07/22/nek1-gene-announcement/

I knew of my grandmother dying of ALS but thought that was it (she died at 73). Last year my mother began with a foot drop and she saw a thrillion Drs, dont know how many CT scans and MRI's. Until last week where it was confirmed it is ALS at age 65. Upon review of fam hx turns out 5 of my...

I'm not sure this is the correct section for this. Hi there, this is my first post on the forum. One of my aunts died a few years ago from FALS (which we thought was sporadic at the time), and another one of my mom's sisters has just been recently diagnosed. I have been very worried and sad...

Got official diagnosis today for my husband. As hopeful as I was trying to be, I knew the outcome. I'm just gutted nevertheless. We're completely at the mercy of the path of this disease, I'm so angry that our future is destroyed. I'm so sad for our children. Sad that he won't see them grow...

We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...