fals

  1. A

    Parkinson's and FALS?

    Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
  2. P

    Ulnar issues & family hx

    Hi everyone, Thanks for taking a moment to read my post. I'm a 32 year old woman, generally good health. The past month or so, I've been having hand issues. I wake up with numb, non responsive pinky and ring finger. A few minutes of hot water, and it's much better. Now I'm having some pain in...
  3. A

    FALS -- changing symptoms?

    I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs. My mother has ALS...
  4. E

    Genetic Testing - Advice, please

    Hi everyone. I am new to these forums but unfortunately not to ALS. My father was diagnosed at the end of 2004 and passed away March of 2006. My grandfather was diagnosed in 2012 and passed away early 2013 (he had many other health issues, as well.) My grandfather's brother had Muscular...
  5. A

    Fals sod1

    Hi all, My husband & I are going through ivf to start a family. We just got the results of our embryo today & it's affected which means my husband 100% has a mutated SOD1 gene. What's confusing me is that no one in his family has it & no one in his extended family either! How is it possible for...
  6. M

    Thank you

    I've only ever written here in a state of panic. This time it's different. This forum, and the pinned post 'Do I have ALS?', have made me realize the anxiety that I have over inheriting FALS. I found the post last time i was wrapped up in fear, and it made me realize that anxiety was the...
  7. A

    Preventing fals from kicking in?

    Hi everyone! I am Anna and I am 26years old from Sweden. I have recently lost my mom to Als and know that we have fals in our family. I have not done the test since it can only confirm if you have the desease but not that you don't. But I have read a lot about what might trigger/cause ALS and I...
  8. NothingButLove

    How does fALS work?

    How does fALS work? I know with fALS you inherit a defective gene. That gene normally codes a protein that performs a function. The defective gene in fALS mis-codes the protein and causes a vital process to malfunction. Is that basically how it works? Assuming it works like I described above...
  9. R

    18 Months - Progressive Symptoms

    Good Morning I had two previous threads on the forum which have closed, 1 regarding my Mom and dealing with her ALS diagnosis and 1 regarding the symptoms I was experiencing after meeting Dr. Google and living with a loved one with ALS. A lot has happened since my last post and I wish I wasn't...
  10. Duker52

    C9ORF72 mutant gene

    I have FALS caused by the C9ORF72 mutant gene. I know as a carrier I had a 50/50 chance of passing the gene down to any offspring. My sister has been tested and is awaiting the results. If her test comes back negative, does that mean she can not pass down the mutant C9 gene since hers is not...
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