fals

Let me start by saying I really hope you all tell me it's all in my head. I've read the sticky thread but I'm still unsure, so please bear with me while I ask for experienced opinions. A little background. A couple years before I was born (I'm 34 now), my paternal Grandmother and uncle (her...

Hi my dad and uncle died from ALS and now I’ve had all over muscle twitches for 4 days. I’m 50, a woman feeling no real muscle weakness. About two weeks ago I had muscle twitching only on and off in right forearm for like three days. Then stopped and now this. I have a very stressful job and am...

Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...

I was diagnosed Wed before Thanksgiving 2017! I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...

hi i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids. today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...

My 55 yo husband has had neurological symptoms for a couple of years and was just told by a neurologist that ALS is "the front runner" in terms of his diagnosis. His grandmother died 30 years ago at 82 of what they were told was something "ALS-like". She was diagnosed in her late 70s. The...

Hi, I understand that you're not doctors, and I sincerely appreciate the effort with which you try to answer the posts here while dealing with this terrible disease (as someone who has lost a father to ALS, I'm unfortunately quite familiar with it). I'm posting here because I'm currently in a...

Hi all, Thank you in advance for taking the time to read this. I am going to do my best to keep this succinct. Any help and feedback is tremendously appreciated. Here is what's going on: In 2011 I lost my mother to ALS. In 2009 my grandmother passed away from MS. I am 26 years old, and...

Hello to all. I am thankful for having a forum like this. My dad was dx with bulbar ALS nearly 3 years ago at the age of 72, and I am grateful for every day he remains with us. He is presently on a ventilator but still has control of his arms to write, so he comunicates with us very well...

I got a call from the doctor at the clinic today. She reported the results were back from genetic testing. My wife has the defective C9orf72 gene. I have so many thoughts running through my head right now. I could create one big scatterbrained, disjointed post. It's probably best to tackle one...