fals

  1. D

    Devastated

    Hi my dad and uncle died from ALS and now I’ve had all over muscle twitches for 4 days. I’m 50, a woman feeling no real muscle weakness. About two weeks ago I had muscle twitching only on and off in right forearm for like three days. Then stopped and now this. I have a very stressful job and am...
  2. R

    Question Regarding FALS

    Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
  3. R

    Newly Diagnosed at Mayo Thanksgiving 2017

    I was diagnosed Wed before Thanksgiving 2017! I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
  4. WendyWooG

    fals or sporadic?

    hi i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids. today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...
  5. J

    fALS and Generations

    My 55 yo husband has had neurological symptoms for a couple of years and was just told by a neurologist that ALS is "the front runner" in terms of his diagnosis. His grandmother died 30 years ago at 82 of what they were told was something "ALS-like". She was diagnosed in her late 70s. The...
  6. G

    Dirty EMG/FALS after 2 years of BFS?

    Hi, I understand that you're not doctors, and I sincerely appreciate the effort with which you try to answer the posts here while dealing with this terrible disease (as someone who has lost a father to ALS, I'm unfortunately quite familiar with it). I'm posting here because I'm currently in a...
  7. J

    Concerning symptoms, losing hope

    Hi all, Thank you in advance for taking the time to read this. I am going to do my best to keep this succinct. Any help and feedback is tremendously appreciated. Here is what's going on: In 2011 I lost my mother to ALS. In 2009 my grandmother passed away from MS. I am 26 years old, and...
  8. R

    No Answers

    Hello to all. I am thankful for having a forum like this. My dad was dx with bulbar ALS nearly 3 years ago at the age of 72, and I am grateful for every day he remains with us. He is presently on a ventilator but still has control of his arms to write, so he comunicates with us very well...
  9. NothingButLove

    The results are in - it's C9orf72

    I got a call from the doctor at the clinic today. She reported the results were back from genetic testing. My wife has the defective C9orf72 gene. I have so many thoughts running through my head right now. I could create one big scatterbrained, disjointed post. It's probably best to tackle one...
  10. A

    Parkinson's and FALS?

    Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
Top