I'm really scared. Not for me, but for my 79 year old father-in-law, who has had problems with the same leg on and off for years. He's had both circulatory problems as well as nerve pain. 5 years ago was my last time of intense worry, when he was having pain in the leg. They never did figure...
I lost my father to ALS three years ago. His sister passed from ALS the year before him. They believed that it could point to Familial ALS. I remeber vaguely in that time someone suggesting submitting to a genetic test for FALS. I seem to remember them saying that even if I wished to remain...
My husbands side of the family has lost 6 men and 1 woman to FALs. The most recent my 33 year old BIL and my FIL who was in his 50's. Is there anyone else who has dealt with this. The progression is very quick, we lost both my BIL and FIL in less than a year. My hubby is not sympomatic at this...
Hi
First post here. I'm a 31 year old male; physically active (typically run/bike/workout 4 times a week; compete in road races, etc.). I'm engaged to be married in several months to my best friend and woman of my dreams. I'm also planning to relocate to a new city in connection wiith a...
Hi!
I am fairly certain I have ALS and just need to talk to someone who may have/may be going through the same things because I FEEL this, but no one can SEE it.
I am having internal tremors 24 hours a day. My entire body shakes inside, but you can't see it when you look at me. Also, my...
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Hi guys!
We unbeilievably BACK from Mayo already. Drove through the night and pulled into the Mayo parking building and stayed for an entire day of testing- we got several of our appointments bumped up by waiting for others to be no shows, so cut a whole day off our stay.
GOOD NEWS! I do NOT...
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Hello all! I'm new here and I'm in the process of being DXed. I want to thank you all for sharing so freely on here..for people new to the process, it brings great comfort as well as a wealth of knowledge.
My appointment with the MND/ALS Center at the U of U is over a month away. I can't...
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Has anyone had a private message from: Manczak Georg? I have trying to promote or sell something. The contact with me was unsolicited and I strongly object to this. If anyone had a real cure for ALS or something that would help people with ALS they would not need to contact people affected by...
I don't know where to start... my dad has bulbar symptoms quite advanced and up to now it's all affected him from the waist up. Now he has fallen twice in 2 days and I dread that this means a rapid progression to his legs. I feel so sad and I can't take this philosophically as I have done with...
Hello,
My father-in-law was recently diagnosed with FTD/ALS. The FTD has been present yet unrecognized/misdiagnosed for quite some time, but now the ALS symptoms have also begun.
We are obviously very saddened at this diagnosis and want to learn all we can in order to be able to support my...
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