fals

Hello everyone! Ok, while I have lots of questions, this one is my biggie. Anyone else have the unusual ALS progression of cortical hemiparetic? In the early days of seeing docs (I let things get pretty far before I saw a doctor), they all immediately said I had right hemiparesis... my right...

In my family tree on my mother's side, you can trace ALS better than eye color. We are clearly in the 10% that is FALS. AND it affects the women. AND its incredibly rapid (diagnosis to death tends to be a year or less in my family... I think 2 years is the max). I'm not so much concerned about...

If you were a FALS family would you discourage your children from sports like football? We have the SOD1 gene mutation in our family and my sons are 2 and 4. My mom had the mutation but it remains to be seen if I do. It's quite possible that the sporadic form which has in some cases been...

I just learned Tim LaFollette has died, What a terrible loss. He was only 30 when he recieved his diagnosed, one of the things that I recall him saying, "I'm not going to die unhappy" He developed his Often Awesome Series on utube with his Often Awesome Army of 600 people. He was a FALS so he...

I am a 35 year old female with 3 kids ages 1-6. My single 66 year old father was diagnosed with ALS in June 2011. He has had weakness since January 2011. So, of course, at the point of his diagnosis I read a lot about ALS and when I read about twitching as a symptom I realized that I too...

Hello my friends, is been a long time, I see some new faces. I have been absent for many months. I found myself in an ALS obsession that I needed a diversion from but sadly I am back as FALS struck again. Although it was so good to read some posts from all of you that despite my absensce I...

I have some queries about hereditary ALS. In this forum I've read that if a parent has ALS, the child has a 50 % risk of developing the desease. I know for a fact that this isn't always true. Some info seems to indicate that the 50 % risk of getting sick only applies for people with SOD1, is...

Familial ALS (FALS)? Hello, I'm sorry if this is not the right place to be asking this question. Not thinking straight at the moment. Found out yesterday that my Mum may have ALS As far as I'm aware my uncle passed away about 6 years ago after suffering from ALS. My Mum (his sister) has...

Hi everyone. Just a little history. I come from a family with a long history of ALS (FALS). Just off the top of my head, I can say I have lost 12 family members to FALS over the past 35 years. Including my sister and her daughter. (plus aunts, uncles, cousins) However there are others, the...

The Pre-Familial Amyotrophic Lateral Sclerosis (Pre-fALS) Study - Full Text View - ClinicalTrials.gov found this, It looks like you have to travel to Emory for the testing.