Hey everyone,
Sorry to roll a few eyes at the"do I have als question" but I'm a little bit worried and possibly over thinking everything but for the last 16 months I've had symptoms, my daughter was premature due to preclampsia and I was really ill. I have hyperreflexia I put it down to...
My muscles supporting my eyelids are going, I now have my eyes closed most of the time or half closed. I can still use my right arm a little and have to manually open my eyes in the morning. My tobi has become impossible to use. Any suggestions on communicating. I can scribble a little on...
Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
advice
anxiety
back
bfs
cramps
dentist
diagnosis
diet
early
emg
emg?
eyes
family
fatigue
female
financial
fingers
health
iron
life
mri
muscle
muscle twitch
neurologist
nose
questions
sleep
speech
stages
stress
support
swallowing
symptoms
tongue
twitch
twitches
twitching
update
voice
weakness
weight loss
work
Hello,
I am 14 months ago suffering from sudden fatigue and weakness in all the muscles including face and neck, with sore in right arm when using for a while, difficult to concentrate, difficult to swallow, difficult to make decisions (quit from my job).
Did MRI for spinal and Brian twice...
Wow...Only in Yakima ...
You will not believe what just happened...
I pulled into the Fast Gas to get a soda and a breakfast muffin. As I got out of my truck and walked towards the store I noticed these 2 cops watching a woman who was smoking while pumping gas... I saw her & thought, "Is she...
A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...
aac
ability
advice
als
communication
dynavox
equipment
eye
eye gaze
eyes
family
friend
hope
information
life
medicare
movement
speech
support
technology
tobii
tobii dynavox
tobii dynavox i-15
work
Hello, I have a question about my condition - I have quite a lot of fasciculations (thighs, calves, shoulders, hands, face, chest, back, little "feelable jolts" time to time on tongue, sometimes even inside of my ear - drum and sometimes I can see flickering in my eyes similar that I see...
Hi there ,
I am new to this site because I would like some information and thoughts . I am a 23 year old female from Australia (I know from researching statistics the likeliness of me having ALS/MND is very unlikely). My story begins a year and a half ago. I had very strange flu like symptoms...
als
anxiety
back
breathing
diagnosed
eyes
female
fingers
flu
food
headaches
hope
information
lump
mnd
muscle
muscle twitches
muscles
problems
saliva
statistics
story
symptoms
thumb
twitches
young
So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
angry
anxiety
back
breathing
brother
caregiver
cost
coughing
cry
crying
diagnosed
dying
eating
eyes
family
grief
hearing
life
pain
peg
sad
sleep
spasms
video