eyes

  1. J

    Getting really scared.

    Hello people, thanks for taking your time to read this and I hope you are enjoying life as much as you can. Before anything I must say that I read this post: https://www.alsforums.com/forum/do-i-have-als-als/26591-read-before-posting-answers-common-concerns-about-possible-symptoms.html But I...
  2. wishmobbing

    Wishmobbing's boyfriend slipped away

    Dear forum friends, after a mostly good year, a couple of harder months and a final night with lots of music and holding hands my PALS peacefully fell asleep and never woke up again. In the 13 month after diagnosis he lost a lot, his work (never missed), his ability to move (accepted with...
  3. G

    My symptoms and their progression

    First of all I would like to thank anyone who will take their time to read my post and maybe provide some information about my symptoms. I have read the sticky post "read before posting" but I still had to post. I know it's long - I just realized it now that I posted a preview. I also hope I...
  4. M

    Is this bullbar ALS?

    Hi @ All, first I would like to introduce myself. My name is Mike I am 34 years old. I have some worries and questions and really hope that you could help me. So let´s start in 2007. When I was 23 years old, so it means nearly 11 years ago I have started with muscle twitching. In that time...
  5. L

    Full face mask and glasses

    My PALS has been using the Trilogy 24/7. As her face has lost muscle tone, leakage has become a major issue. Both due to noise and air blowing in her eyes. She has been using the ResMed F10 in XS and even with that we have had to modify the head gear for a tighter fit. Anyway, the problem...
  6. J

    Need advice on tarsorrhaphy please

    Hello, I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7...
  7. B

    Another Dog Video - "Musical Mutt""

    CAUTION: If movement causes seizures, don't watch, shut your eyes and listen. *Applause to Gabe the Dog. B :cool: https://youtu.be/CY8WcrZpf4Y
  8. D

    Emg questions part 2

    Hello, I would've reffered to my last post but due to time it was closed so I'm back reporting my results from April 2018 from Houston Methodist. The NCS/ emg were basically the same as 6 months prior, emg still showing chronic denervation with partial reeinnvation and NCS showing 40% slowing...
  9. A

    Inquiry about Respiratory Onset ALS

    I have read the “Read Before Posting” section and must admit that I do not have clinical weakness. However, my symptoms are not typical of limb onset ALS, but rather respiratory onset (or perhaps thoracic?). Quick information about me, I am a 30-year-old male. I completely understand the...
  10. A

    Could this be als?

    Dear all, I am 27 year old male. For the past 3 month i started to have severe panic attacks and depression which is caused by my hypochondria due to feeling very sick all the time. (Occasional difficulty breathing, tachycardia, feeling hot, sweating, tremors and low grade fever, losing 15 kg...
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