Oh, man....did you ever feel so unappreciated? I feel so very very hurt right now.
There's nothing I won't do for Ron...NOTHING...I would give my very life to protect him.
We had our friends over and Ron's sister and husband over. Ron had to go to the commode and he was having painful cramps...
I would greatly appreciate some input from anyone current on AAC Devices. I have Bulbar onset and already have greatly compromised speech. I was evaluated by Speech Pathologist for AAC this week and tried out the Tobii1, and the Accent 1200. They are no longer showing the Dynavox as it will not...
On The Wings of Sparrows
Bound by movement.
Bound by speach.
Bound by the unknown and fear.
I close my eyes and dream.
The Ties that binds falls apart.
And seek the flight of sparrows.
To dance on the freedom of the wind.
Not an eagle nor falcon.
Sometimes overlooked but always there.
Reality...
Hello members of the community, thank you all for reading this. I have read the stickies but believe that I could benefit from your additional input. I am a 43 year old male and I am presenting with the following:
In May 2014 I presented to my primary care provider (PCP) after experiencing...
Nancy Frates with Pete Frates and 4 others
Hi Everyone - Just returning from ALSA meeting in Tampa. Briefly here is my update:
1. I am overwhelmed to have met all the staff who work in National and all the Chapters around the US. Most of them have been on the horrific ALS journey with a loved...
Two years ago today, and the sadness, the pain, the emptiness, the loneliness, the struggle to adjust to my life without you and face each day with a smile and faking that all is okay is enormous. I never realized how alone one can feel in such a big world but I do. I get lost in my thoughts...
I'm now certain I have ALS and this terrifies me.
First of all, this is my second post. I few months ago I was scared I had ALS but with some knowledge from you guys and seeing a "neurologist" (who did absolutely no tests except sit there and take me as a joke) I have up and just told my self...