eyes

  1. Nikki J

    Air mouse

    Someone in another group said she was going to get an air mouse called zono. It looks cool on the website. Has anyone seen used or heard about someone using it? It seems like you could use it if you have just a small amount of movement in head or extremity so not if you really only have your...
  2. Nuts

    Trilogy Mask Leaking

    Hubby has the mask that covers his nose and mouth (he has obstructive sleep apnea and does breath through his mouth sometimes). He's gotten very used to the Trilogy, and seldom wakes up because of leakage. I'm a different story--any change and my eyes shake my brain and tell it to get to work...
  3. anderkling

    The Blessing of Scripture

    As a PALS, on this difficult road, facing "the valley of the shadow of death" I have been drawn to "feasting" my heart and soul on the comforting, encouraging words of Scripture as perhaps never before. No longer able to work, I have time for deeper prayer, and what a joy it is! This word from...
    • anderkling
    • Thread
    • christian death eyes fear heart life lifts running work
    • Replies: 66
    • Forum: Religion
  4. Gracious99

    feeling terrible with no cause- advice?

    Hey everyone, I've been a member here for sometime, just reading your posts and getting advice quietly, but I haven't seen any posts on what my husband seems to be going through right now. He says that it's not in pain really, but that he just feels terrible all over. He sits with his eyes...
    • Gracious99
    • Thread
    • advice bipap eating eyes flu go away hours mobility night pain reading walker wheelchair
    • Replies: 30
    • Forum: Current caregivers
  5. Green Queen

    I look fantastic !

    Today I saw a lady I have known forever. Apparently I look 'Fantastic ' Oh. I don't remember the last time I could be bothered to brush my hair. Or wash it, come to think of it. I can't be bothered to shave my legs because...I can't be bothered. I am so exhausted my good eye is having trouble...
  6. JimInVA

    Tobii Series 11 and Facebook...

    Darcey received her Tobii late last year. She could not use it at first as they neglected to provide her with a mount for her wheelchair. Now she has a mount and has begun to use it. One of her greatest joys is being able to communicate with her friends on Facebook (FB). As she still comes...
  7. L

    IBM - Mimics ALS

    My husband was diagnosed with ALS in the Fall of 2012. After 6 months of testing and treatment it was determined he did not have ALS but instead had IBM - Inclusion Body Myositis which mimics ALS without the tragic ending of death (although some IBM cases do sadly end in death as well). We...
    • LMCOMISKY
    • Thread
    • advice als awareness death diagnosed eyes information life testing treatment
    • Replies: 6
    • Forum: Off topic everything
  8. M

    please help !

    I need any insight I can get my dads symptoms started in may 2012 with weakness in his right hand now he is a complete paraplegic but his breathing is totally normal and he swallows with no issues. Back in 2012 my dad had a cancerous tumor removed from his vocal cord, the cancer scare made my...
    • marymunson
    • Thread
    • als back breathing clinic cold confused confusing decline diagnosis emg eyes falling family frustrated meds neurologist pain parkinsons please help symptoms tests turkey vision weakness wrong
    • Replies: 11
    • Forum: Newly diagnosed
  9. B

    Who here uses an Ipad to communicate?

    I just inherited an Ipad set up to type in words or sentences, and it speaks. It came from his daughter who is friends with my son and wife. The Ipad was used by a fellow ALS victim who passed away recently. It is to late for any voice banking for me, my speech was bad at the time of my...
  10. K

    this happened this morning

    This morning when my husband got me out of bed and put me on the commode....for about 10-15 seconds I couldn't talk and my right hand I couldn't straighten or move my thumb, pointer 9 middle finger. The ring finger and pinkie I could move but not straighten out....I did feel a bit fuzzy or...
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