eyegaze

  1. R

    3 years ago today

    It is 3 years ago today that in a busy hospital ward, the only privacy a curtain surrounding the bed, those words were spoken to my husband "Mark, I am sorry, you have Motor Neurone Disease" With slurred speech Mark asked the dreaded question "How long have I got" .............. Oh how our...
  2. catcaniac

    ALS Progression

    I just wanted to get some feedback on PALS progression. From what I have read in the past, eye function and bladder functions are generally unaffected in ALS patients. My husband was diagnosed last December and had been experiencing symptoms since last June. He has been trached and ventilated...
  3. catcaniac

    Our Upside Down World

    I haven't posted on here in a while. Things have been crazy. I fired the one nurse I discussed on my last post. Haven't been sorry for it one second. Things have improved there. Week before last, I was preparing to go back to work. My first day back was August 17th. As of last Saturday, it...
  4. T

    Dynavox Vmax/Eyemax Eyegaze computer/speaking system for sale

    I have a practically brand new Dynavox Vmax/Eyegaze computer speaking system for sale. I purchased it for my father, in 2010, and he sadly passed away in June after a long battle with ALS. He probably got near 2 months usage out of it, before he could no longer use it. It was around $18,000...
  5. P

    Speakbook – brilliant new low tech eyetracker device, and it’s free! (well almost)

    Hi guys, This is my first post here - I certainly recognize some of you!. I have ALS myself - 3 years now... Do you use eyegaze? Or would you like to use eyegaze but haven’t got one? Have you lost your voice and your hands don’t work very well? Then this is for you. I’ve developed a low tech...
  6. catcaniac

    FTD or depression?

    I've never posted in this section of the forum before but after this week, I am wondering if it will be something I will now be frequenting. How do you know if your PALS is developing FTD? We won't be going to any more doctors with the condition he is in. We finally got his doc to make a home...
  7. M

    Small pupils near the end

    Hi everybody, Some of you know my father past away three weeks ago... my... has it been that long already? It still seems unreal, especially now I'm back in Holland. Well, I can't stop replaying the last view weeks of my fathers life. Just can't help it. It's usually during the night or in...
  8. LizT

    This is why we dont assume...

    You know that old saying- when you assume you make an a** out of u and me? Boy oh boy did i learn a lesson today! My PALS wanted to go on the computer today and i really didnt feel like it. So after I stomped around for a minute or two, we went on- though i wasnt too happy about it. Anyway...
  9. halfin

    Dynavox V-Max with eyegaze

    I am using my new Dynavox VMax with eyegaze to write this. Actually I have had it for a month but I am trying a lot of different modes and settings so I still have much to learn. The fastest way to type is to use the mouse to select letters and words on the screen. It came with a small...
  10. S

    Different Communication Device

    My Pals has a eyegaze, guess what the the camera went out, and it is out of warranty. Does anyone know of anything out there that can be installed on a regular comupter that will allow him to use his ability to talk to type on his facebook. I am at a loss. He is grumpy because he can't use...
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