exhaustion

My journey began nearly 30 years ago, when I woke up one morning and couldn't walk. I previously had a bullseye tick bite, and assumed Lyme disease. Every test taken since has been negative. I had symptoms come and go for many years, with exhaustion, stiffness, and leg weakness being my main...

I'm 6 months in. I've tried to be positive to friends and extended family. It's ok... I'm staying positive. Because what else can you say? And most of the time it's true. I've tried to keep a brave face for my kids. Mummies hands don't work very well... Yes, Mummy is very slow. Why did you fall...

Hi, I have been here before but mostly just quietly listening. Here's our story in a nut shell. My brother was officially diagnosed in December of 2015 although was told he may have ALS a year and a half earlier. Once told that he went on with his life until a year and a half later when things...

I have tried posting this thread several times over the past couple of weeks but just could not muster the strength to do it. Everyone here has so many issues that burdening anyone with reading mine adds to more guilt I have been struggling with so many feelings of grief, guilt, despair and...

I'm a 26 y/o make it all started around a January of 2015 with muscle twitching all over my body and then I started noticing my muscles burning like if I'm under car working holding my head and arms up they burn of exhaustion. I've also dealt with off and on dizziness and unsteadiness which I...

Hello, I want to thank you all for taking the time to read my post. I've been reading the forum for a while now and have found myself getting more confused. I have read the stickies and realize we need to wait for all the proper testing for a diagnosis, but am hoping someone can make...

Hello - this is my first post to this site. I have been experiencing unexplainable symptoms since May 2015. I am a 40 year old female who used to be in fairly good health. That all changed in May. I started having body wide muscle twitching which has only gotten worse. This is only one of MANY...

Up until recently, my dreams were mostly my safe haven. I could talk clearly, whistle, sing and eat a big fat juicy filet! Now my dreams replicate my current status. If I had the strength, I'd like to go to a junk yard with a ball bat and bust as many windshields, headlights and bumpers until I...

I'm aware that in later stages of ALS symptoms present as True Weakness, but I was curious as to what many of you first experienced with ALS. I found an interesting website that describes three different types of weakness. Primary or true muscle weakness This shows itself as an inability to...

I've been reading the forums, specifically the DIHALS threads, for 15 months now. My ALS scare lasted 9 months and nearly shut my life down completely - but I've rarely ever thought about developing ALS myself over the past 6 months. I am an actively practicing Internal Medicine MD. I made a...