I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast.
Until about...
Hi everyone! First I wanted to say a huge thank you for these forums and the time you put up with a lot of people with symptoms that are in need of help.
That said, now to my condition:
My name is Felipe I'm a 30 M who lives in Brazil.
I've started with a fasciculation outbreak on my whole...
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I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...
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Hello, people!!!
I'm so sorry for bothering you all and taking your precious time.. One day(it's became my dream lately..) I want to discover a cure for this awful, terrible disease...
I'm a tall(1.85 m), white, 14 year old boy living in Europe. Recently I've noticed muscle twitches mainly in...
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Hi
Im 48, male from the UK.
I'll keep this short. Im worried sick i have als.
Around 6 months ago i noticed knee pain when bending in both knees. Around a similar time i noticed it needed a bit more exersion to raise from a chair. It was the knee pain that hurt though when raising rather...
I apologize if this has posted twice, I couldn’t tell if it did the first time. For the past two months I have been experiencing some very concerning symptoms, and so naturally I went online and it said it could be ALS. It started out with very bad cramping in my whole body (with occasional...
I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is.
Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...
Hi, really looking for ideas about what is going on with my mum. It’s along and complicated story so I’ll try to keep it brief!
She’s never been the most healthy of adults. She had a heart attack in her late 40’s, drank too much alcohol and smoked and got little in the way of exercise. She...
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This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently...
Does weight training help with PLS?
It seems to keep me strong and I have had very little weakness with my PLS. The only negative is that it makes my stiff legs even more stiff. This is because I have the stiffness from the exercise on top of the PLS stiffness.
I hope to hear form TxRR...