equipment

  1. S

    EQUIPMENT, SUGGESTIONS & Some INFO

    First off, I have supported my PALS, gathered equipment and supplies looked for solutions. I no longer have a need for much of this stuff and have worked to see about it getting to where it needs to be - such as other ALS patients. Some of the equipment you get for the PALS is being "rent to...
  2. Bestfriends14

    Dodge Caravan SE 2014 Minivan conversion

    Hello, I know this type of question was somewhat covered in another thread, but we have an opportunity to buy a really decent wheelchair van at a good price. It has low mileage and is only 30k CDN. Does anyone know much about the above van? We'll be using it to drive from Calgary to Palm...
  3. A

    Tobii with eye gaze

    I've been looking to buy a Tobii with eye gaze technology for my mother who lives in Brazil. Unfortunately her insurance in Brazil doesn't cover this equipment. Any leads for purchasing one here in the USA, would be very appreciated.
  4. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
    • Stacygol
    • Thread
    • anxiety back caregiver caregiving cry diagnosed equipment meds new caregiver night respite sad sleep worry
    • Replies: 8
    • Forum: Current caregivers
  5. K

    Also...Slow or Fast Progression?

    Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
    • katygal
    • Thread
    • alsa breathing chair clinic diagnosed equipment feeding feeding tube fvc hospice lift money progression pwc symptoms trilogy
    • Replies: 6
    • Forum: General discussion about ALS/MND
  6. L

    Rebuilding

    This will probably be my last post on the forum. At the time of Eileen's funeral I weighed 122 lbs, I am now at 134 lbs. I'm not sure if it is just my nature or my strong belief in God, but even before the funeral, I felt that God did not want me to waste the rest of my life in grief. I made...
    • Larrytbm
    • Thread
    • als caregiver chair equipment grief handicapped van life locked in medical medical equipment mobility van worry
    • Replies: 4
    • Forum: Past caregivers
  7. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
    • ThisPresentMoment
    • Thread
    • age back bed bipap caregiver caregivers dad diagnosed equipment feeding feeding tube hearing heart home care hospice hoyer hoyer lift lift night respite swallowing toileting veteran voice volunteers
    • Replies: 10
    • Forum: Current caregivers
  8. T

    Never wanted to do this.

    Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...
    • Texasguy210
    • Thread
    • als anxiety back diagnosed eating emg equipment family go away hours life mistake neurologist reading scared symptoms twitches wanted work young
    • Replies: 2
    • Forum: Could this be ALS?
  9. L

    3 months later

    First, when Eileen was on hospice, I couldn't share all the details of her passing, even now some of it is more than I can talk about on the forum. When the time came, with two pastors, family and friends in the room, I couldn't let a stranger make the final step. So, I turned off the Trilogy...
    • Larrytbm
    • Thread
    • als back dentist equipment family go away grief holiday hospice life lift modifications ramp shower switch trilogy van work
    • Replies: 3
    • Forum: Past caregivers
  10. J

    Insurance/Medicare Coverage for Shower-Commode Chair

    I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...
    • Jay Q
    • Thread
    • chair denial diagnosis equipment info insurance medical medical equipment medicare shower
    • Replies: 5
    • Forum: Tips, tricks, and gadgets
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