1. V

    Fasciculations and Possible Atrophy

    Hello all, I have been on this forum reading and learning, but decided to finally do my first post for my own concerns. Before I explain I'd like to say I truly see and experience the strength and knowledge you guys have whether you were diagnosed or took care of a loved one, etc. I truly admire...
  2. M

    Trouble getting a neurologist referal

    Hello all, Let me tell you my whole story... I started having pain(muscle ache) in my shoulder March first. Went to a redicare Dr on March 11th and let the Dr know the muscle pain is also in my arm as well as shoulder and moving around. Was told this was myalagia and to follow up with primary...
  3. C

    Urgent I’m worried

    Hello people reading my thread hopefully. For a month now I’ve been experiencing Fasciculations that are not painful in both of my biceps, chest, back and thighs with less common Fasciculations in my neck. Pretty much Fasciculations everywhere everyday. My grandfather passed away from als. I’ve...
  4. G

    Just some questions

    Hi everybody I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy. I’ll try to make this pithy, but it’s a long story, if...
  5. A

    Muscle weakness, hyperreflexia, clonus and spasticity

    Good afternoon, I am one of a thousand people who visit the internet in search of answers that are not readily available from a neurologist. It is a frustrating process that drives us to chat rooms such as these seeking reassurance or answers and I am grateful for any input that is provided...
  6. O

    Reluctantly Posting my symptoms

    Ive been lurking in this forum for the last couple of weeks seeking reassurance as I really didn't want to waste anyone's time with my concerns. I've found it amazing and heart warming the selfless amount of time PALS spend responding to individuals. I'm a 31 year old male married to an amazing...
  7. J

    Please Help Me

    I apologize for the length, but would love to hear anyone with knowledge weigh in on my situation. I am a 28 year old male. About 6 weeks ago, out of the blue, I started experiencing pins and needles in my arms, hands, ankles and feet. For a few weeks that was my only symptom. It subsided for...
  8. H

    Help! Diet protocol for ALS???

    Hi my boyfriend has been diagnosed with ALS. I am having difficulty finding a diet protocol for this disease. Does anyone have any ideas or pages they can direct me to to find out more please?
  9. B


    This was posted on another ALS Forum: ------------------------------------------------------------------------------------------ Animal Study Suggests ALS Motor Neuron Loss May be Delayed with Triheptanoin September 20, 2016 Teresa Pais, PhDby Teresa Pais, PhD Because of increasing evidence...
  10. Nuts

    Trouble getting motivated

    I'm having trouble getting motivated to do the things I need to do. I find myself actively avoiding anything other than direct care of Matt. I can't get them all done, so why bother doing anything. I've upped my meds and started a 5 session course with a therapist. I've started a new quilt...