end of life

  1. momap53

    Advance Directives - Five Wishes Directive

    Becky had asked me about the advance directive called Five Wishes that I used to outline how I want to be treated when I'm nearing the end of life so I thought that others might find this information helpful. Here in the US, each state has different guidelines for this. More information can be...
  2. A

    Final stages and lingering

    My mom is in her final days and quite possibly her final hours now. She has not eaten anything in 2 weeks and 4 days, stopped drinking 5 days ago, and since then has only had a few bites of crushed ice each day. She has all of the typical signs of end of life - the darkened urine, dark blotches...
  3. A

    In your experience, how long?

    I am 25 and the caregiver for my mom, who is 56 and was diagnosed with ALS in September 2009. She is completely unable to move any part of her body from her chest down. She still has very limited movement of her hands, but her index fingers are the only ones that she can really control the...
  4. M

    Advice Needed

    Hi - I'm not new to the forum, but tend to only read, learn & empathize with everyone here. My sons' father and dearest friend (I hate to call him my ex husband) was diagnosed after a long process in December 2010. The disease is now really beginning to progress - started in his hands, moved to...
  5. E

    Frustrated and afraid

    These last few months have been tough. My loving husband has become a angry hatelful man. He used to be my best friend and we could talk about anything. Now anything I say or do is wrong and met with anger. He has announced he does not have ALS or anything like that, he is not going to die...
  6. M

    Attitudes towards end of life issues among people with MND

    Hello, I am a junior doctor in London with an interest in neurology. In collaboration with several consultant neurologists at Barts and The London Trust, I have written a survey about attitudes towards end of life issues among people with MND/ALS. It covers some sensitive issues, such as...
  7. LovemyPALS

    The Captain passed 1/8/2011

    Although I have not been a daily or consistent attendee of this forum, I feel lost and don't know where else to turn to get understanding. My father, The Captain of my families ship and the Godfather to my family passed on 1/8th 2011. Although, we knew this time would come eventually, we did...
  8. irismarie

    hospital

    just a bquick not to let you know th&at from this pm i shall be in Montauban hospital in the neuromogy department. couple of falls whiole trying to transfer yesterday and during the nightbwhen i was alone and i hurt ; just p&r&yin gmy daogs will be ok. people have promlzed to look &fter them I...
  9. CCMominVA

    New here

    Hello everyone, I am a caregiver along with my mom for my father, who was diagnosed with ALS in Oct. 2006. He has been very mobile up until about a month ago, with limb onset. No bulbar symptoms at all, he still is able to eat and drink without problems, and his speech is as clear as the day he...
  10. DgtofTNfan

    Caring Connections Website

    Found this website when working with someone with questions regarding Advanced Directives. I was not sure if you guys were aware so I thought I would post. Caring Info - Planning Ahead Caring Connections has quite a bit of information for Advanced Directives including printable documents by...
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